How to get Lorenzo's oil?
Hello everyone I have 10 year son who is suffering with ALD, and I'm in Virginia....
Newbies needing some advice 😊
I’m new to this site ( not new to ald, unfortunately my son Reuben was diagnosed about 7 years ago, he’s 10 now, with his diagnosis my dad al...
Last year after the onset of FND, I had a psychiatrist who recommended that I get on L-methyl folate due to a genetic marker....
Fish oil (DHA) + Lorenzo's oil
In conclusion: it was confirmed that supplementation with DHA, in addition to LO and treatment with a cholesterol lowering drug, atorvastatin...
I was just wondering if anyone else was having trouble getting hold of Lorenzo's Oil? My son has been without it for just over a month now....
Hello folks. Does anyone here actually take Lorenzo's Oil?...
Looking for a neurologist
We live in NJ and are looking for a neurologist in the NYC, NJ/Phili area that is familiar with AMN as most doctors we have used don't know m...
28 years with AMN
I was diagnosed with AMN after my left kidney was removed when I was repairing HVAC....
What's your view on Lorenzo's Oil?
To help you, please read page 2 of a research paper in the International Society of Neuropathology about Lorenzo's Oil: aldlife.o...
MRI/MRS Brain Scans
HI, I had scans in March and I was told the is a chemical change on one side of my brain but they were unsure what it is? I just had another ...
Thank you Lacey!
I have Rheumatoid Arthritis as well as Fibro, and so I follow an anti-inflammatory diet ( see ' Food Hospital ' website for details, but ther...
REDUCING VLCFA COULD REDUCE SPASMS AND OTHER SYMPTOMS OF AMN.
Without this gene, those with AMN and XALD cannot remove the VLCFA from their bodies, and so the VLCFA gradually accumulate in their blood an...
Recent postings by ROBSUPERNOVA
You will all be aware that Rob has posted extensively over the last few months about various drink formulas that he has developed which he be...
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