Hi, I'm new to healthunlocked which is a brilliant website, and I recently joined the thyroid uk forum as I have Graves disease. I did a quick search around and found this forum for adults with cerebral palsy. I'm writing on behalf of my sister who is 44 and has cerebral palsy.
I have been reading many of the posts in the cerebral palsy forum and the discussions are so similar to conversations that we have as a family with my sister, about how the condition is so isolating, and it's difficult to get in touch with other adults struggling daily with the same condition. Having the love and support of immediate family is a wonderful thing, but there is nothing quite like establishing contact with other people experiencing the same physical condition and all of its complications and the emotional impact that it has on daily life.
Disappointingly it seems that nobody has posted on this forum for quite some time, but if there is anybody out there who would like to chat with a warm, lovely and caring person (my sister), who copes admirably with this condition on a daily basis despite all the difficulties that it imposes, I know she would love to hear from you, as I so wanted to recommend this forum to her. If there's anyone out there who wants to share their experiences of this condition with a really understanding and like minded person please get in touch and I will get her to join and reply to you.
Hope to hear from anyone out there with cerebral palsy so that none of you need to feel isolated and that you are coping alone. I think there are many people out there with this condition who are not aware of forums like these. Hopefully if there are some responses, this forum can get going again. Looking forward to hearing from you!
Hi there, I'm admin and have cp. I'm 28 years old. I haven't posted for a while as I have been unwell. I am going to post tomorrow and keep the forum up to date life has just got in the way. Would love to have your sister as a member.
Many thanks,
Rachael xx
Hi Rachael,
Thank you very much for your reply. Sorry to hear that you've been unwell and I hope you are feeling better. Time flies doesn't it. It looks as though it has been a few months since anyone posted anything on this forum. Tricky thing is I guess a lot of people with cerebral palsy wouldn't even know that it exists which is a shame. Let's hope it can get up and running again!
music55
xx