New Diagnosis : Hi. I’m new to this... - Living with Inter...

Living with Interstitial Lung Disease (ILD)

New Diagnosis

DebsnAlf profile image

Hi. I’m new to this forum, my husband just got diagnosed with Hypersensitivity Pneumonitis yesterday. Does anyone else on here have this form of ILD? I’m looking for advice on living with this condition with perhaps an idea of what the future might hold in store for him. Any advice greatly received x

4 Replies
Dot_ChestILD profile image
Dot_ChestILDAdministrator

I’m so sorry to hear that. I don’t have that diagnosis but we do have some doctors that can advise you. How can we help? We also have literature we can send to you if you like. Please know your not alone. It can be very difficult for the family when a loved is diagnosed with a horrible disease.

What have the doctors told you? Do you have a pulmonologist?

Hi , I have an idea intstitial lung disease - non specific Interstital pneumonia, so can’t really answer your questions. There is an interstitial lung disease forum on health. Unlocked. It’s not as busy as this forum, but if you post a question, some one usually has an answer. Take care

Hello

My boyfriend also has hypersensitivity pneumonitis, I do not have any information to give you as we are in the early stages. But sending love and hope he's ok.

It's not easy loving someone that.is going through this. Just wanted to say hello

I find looking at this website helpful just by reading anyone's stories.

I have a book that k write anything down into that may help.

Take care X

Hi, I have HP and my antigens have not been found, so I’m medicated with prednisone and Cellcept to get/keep the inflammation in my lungs down so I am less short of breath and to prevent fibrosis (scarring), which is irreversible. Happy to answer specific questions privately or in this thread.