Welcome to the CHEST Foundation Interstitial Lung Disease (ILD) Community for support of Interstitial Lung Diseases (ILD)!
We’re very glad you have chosen to be a part of our community. The CHEST Foundation ILD community - offered by the CHEST Foundation and HealthUnlocked (HU) - supports individuals affected by ILD. Whether you are an individual who has been diagnosed, a care-partner, family member, or friend, we hope this community is a safe and supportive place for you to share your experiences and find information and support.
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The guideline highlights:
• Be kind, respectful, and understanding of one another
• Post from your own experience - “For me, this worked…” rather than “You should do this…”
• This is a space for emotional support - keep the medical advice to the professionals
• Only share third-party information from credible sources, and site your source
• No political content - it only causes disagreements
• This community should not be used for commercial or personal promotion - no selling, no fundraising, no spam
• If you see something you’re concerned about, use the reporting functionality to flag it to the moderation team
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This community is moderated by a group of volunteers and HealthUnlocked.
The ILD community is part of HealthUnlocked, a network of over 200 conditions and wellness communities from organizations. By using HealthUnlocked (HU) you are accepting these posting guidelines and agree to HealthUnlocked’s site Guidelines and Terms of Use. HU’s Community Guidelines and Terms of Use are incorporated into these Community Guidelines and Members of the ILD should carefully read both documents in conjunction with the CHEST Foundation ILD Community Guidelines outlined below.
HU Community Guidelines: support.healthunlocked.com/...
HU Terms of Use: healthunlocked.com/policies...
Below are the ILD Community Guidelines, which are aimed at creating and maintaining a safe and supportive community for all of our members. These Community Guidelines are in addition to the HU Community Guidelines and Terms of Use.
Professional Health Information:
The ILD Community strives to provide useful, up-to-date information on matters of concern to individuals with ILD and other members of the ILD community. The information posted on this site should not be used as a means of diagnosis, determining treatment, nor replace the relationship between you, your doctors and other healthcare professionals. Even if another user appears to be a medical professional they are not in a position to undertake a physical examination or understand your full medical history. Always consult your physician or another health care practitioner for diagnosis and treatment options.
Community Atmosphere:
The ILD Community is a safe, supportive, informative, and friendly community for people affected by ILD. Your participation in this community should be with respect, honesty and in the spirit of supporting and learning from fellow users.
Please note that while CHEST Foundation is an organization based in the United States, members may be located worldwide. As such, details on approved medications, treatment protocols, healthcare, insurance, and other related topics may differ and should always be verified depending on your specific location.
Posting Content (Posts/Questions/Replies/Private Messages):
Content posted by individual members does not represent the views of the CHEST Foundation or HealthUnlocked and neither CHEST Foundation or HealthUnlocked is responsible for any content posted to this site, whether by an individual user, volunteer or moderator. All users use this site at their own risk and waive any liability against CHEST Foundation related to their reliance on information provided on this site.
Posting content on this community is taken as your agreement to post information that is true and accurate to the best of your knowledge, and that is primarily drawn from personal experience. You are encouraged to post content about your own experience with ILD (or that of a loved one), ask questions, and offer support and non-medical advice.
Content should never be abusive, derogatory, sexually explicit or suggestive, or deliberately misleading. If you believe someone else’s content violates this rule, please report it via the “Report” option. Content that is felt to violate this policy will either be edited or removed. All reports are read by admins and moderators and it is their judgement on what action, if any, is taken.
Neither CHEST Foundation nor HealthUnlocked is responsible for any offence or injury that a member may draw from another member’s content.
Content posted by moderators, volunteers or healthcare professionals represent is that of those individuals only and is not on behalf of CHEST Foundation or HealthUnlocked unless specifically stated otherwise.
Any content posted on this community can be read, used, reproduced, and cited by other users of the site. You have the option to delete content you posted.
When you post third-party information, such as information about new treatments, you are asked to provide references and links to sources wherever possible. Please ensure links are to a reputable site.
Moderating Content:
Content posted on this community is moderated by group of volunteers and HealthUnlocked. Moderation occurs only after content is posted.
Moderation helps maintain a safe, positive environment for all members of the community. Content may be edited or removed to ensure that the community remains supportive and responsive for all members.
The community is open 24 hours a day, 7 days a week. Moderation occurs after posting and primarily between the hours of [9 AM and 5 PM EST Monday through Friday]. This means there may be a gap in time between when a post is reported and when it is edited or removed, if deemed necessary.
Solicitations:
Please note that CHEST Foundation does not endorse or recommend any specific products, services, therapies, or activities mentioned by any third party (individual or company).
In this community, there may be discussions of health-related issues and sharing of personal information.
Please note that the ILD Community is an open site, meaning that any posts are searchable by internet search engines and can be shared via social media platforms. The default setting of posts allows them to be visible to individuals who are not members of the community. If you would rather your content was not searchable, you can change the visibility of your post by selecting "Only followers in my community" before clicking submit. This will result in only the post title and first line of text being visible to those who are not members of the community.
For your own safety, you should not disclose personal information such as your full name, email address, home address, telephone number, or any other information which could directly or indirectly identify you.
For more information on general online safety guidelines please visit: consumer.ftc.gov/articles/0...
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