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Living with Interstitial Lung Disease (ILD)

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MaddieHU profile image

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2 Replies

I was diagnosed with interstitial lung disease yesterday and am strangely depressed about it. It's not like I did not know something was wrong, but I am disappointed that there is not much treatment and I must come to terms with a further altered lifestyle. I have many autoimmune diseases. The major ones are Sjogren's, PMR, Lymphocytic colitis, Raynaud's, cold urticaria. In addition my lumbar and cervical spine are beyond repair. I want to remain in my home in Round Rock Texas and care for my 84 year old husband who has dementia. It is becoming increasingly difficult. Do you think counseling would help? I am 80 years old, a master gardener and love to be outdoors.

Sam_ChestILD profile image
Sam_ChestILDAdministrator in reply to eternalgardener

Hello! You are not alone. It sounds like you have many medical conditions that you are dealing with on a daily basis. Adding a new diagnosis of ILD is probably very overwhelming. We are here for you and can help you navigate this diagnosis. Counseling can always help if you feel that’s something you want to explore. The most important thing we strive for is maintaining your quality of life and you CAN continue to have a fulfilling life even with ILD. We are happy to talk more