People with PBC

[MrsPearson]

Is there anyone that has been diagnosed with PBC. Primary Biliary Colongitis. I am looking to find someone in the Lymington area who has the same incurable liver disease. To talk to either face to face or just texting

[L4LRich Partner]

Yes, we run a group for people with Auto-immune conditions (PBC, PSC and AIH) at Castlepoint Library in Bournemouth on the second Tuesday of every month, you've just missed this one but the next one is 14th August, 10.30am if this helps. If you phone our helpline with your email address we can add you to the email reminder list

[Bermuda1]

Hi there have been people with PBC on before , and I know there are facebook groups for people specifically with it , as well as general liver disease and cirrhosis groups . I hope they have you on URSO or OCTAVIA?

[MrsPearson in reply to Bermuda1]

I would love to come to the support group in Bournemouth unfortunately and it is a big unfortunately I work full time and can’t do anything until 4.00pm Monday/Friday. My weekends are always free.

What a shame. What is the telephone number I could ring just so they can have my details

[butterflyEi]

Hi I live between Portsmouth and Southampton. Happy to help if you want to chat through the icon at the top of this page although I see the Administrator has given you a group contact.