Access to Advagraf post Brexit
Hi all, I don't want to get into a political debate re Brexit! I wanted to mention that when in clinic recently my liver pharmicst mentioned ...
The call part 2
I tried to write this twice but keep losing my connection. Firstly may I say a huge thank you truly from my heart....
Slight bad news
Hi just over 5 months since liver transplant and had call from consultant after clinic visit on Tuesday....
My husband has been battling liver cancer since 2016
I am new here so bear with me. This has been an extraordinary journey filled with a roller coaster of emotions....
Had a 2nd Opinion at the Christie, still the same response. Has any one used COC protocol?
Still the same view, inoperable and incurable. Now terminal with 12 - 18 months....
No treatment no transplant nothing
My family member got diagnosed nearly 3 years ago, after a quick couple of rounds of tace which the doctors decided to discontinue he was sen...
Have had liver transplant 6 years ago due to hep c through contaminated blood transfusion....
Follow up after Transplant Problem
Hi all, All has been going really well for the first 9 months, but just before Christmas I developed a spot /lump on my head, I went to the s...
Hi all, Hope you are all doing well. Some of you may remember me previously posting about a book I was writing....
I don’t post much but wanted to share that my husband is going through two days of testing to see if he is strong enough for a liver transpla...
A Little Help
It has really helped me with anxiety symptoms and overall just gives me a piece of calm....
World Transplant Games 2019
I think a lot of people where quite surprised by the success of the World Transplant Games this year. It’s a shame there wasn’t more media co...
Hello everyone, just wanted to say hello to you all and thank you all again for your support and helping me calm down. I have this overwhelmi...
Bevacizumab (Avastin) availability in Wales - your comments needed
They are currently involved in the process of reviewing bevacizumab for advanced epithelial ovarian, fallopian tube, or primary peritoneal ca...
Unsure of prognosis
I am unsure of how bad my liver disease is or my life expectancy. At the end of last year I had an ultrasound as I had ascites and was called...
Husband has liver cancer due to cirrhosis caused by alpha one antitrypsin deficiency. Last couple of weeks he has deteriorated to the point o...
Portal vein wedge pressure test
Grank has an appointment next Monday for a portal vein wedge pressure test at QEHB to see whether he is suitable for either Plan A which is a...
Liver disease affecting your relationship
My husband was diagnosed with end stage liver disease 3 years ago....
MRI and waiting
Hello and greetings to all xx I am waiting on the transplant list. I have two tumours....
My mum, my best friend
We have just completed assessments for a liver transplant but not yet on the waiting list....
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