Anyone from Wales?

[LadyL07]

Hi Ladies, i have lipo-Lymphoedema and I’m living in Swansea and wondered if any of you lived in the surrounding areas? I meet up with other ladies with Lipoedema from other local areas such as Cwmbran, Newport, Ebbw Vale, Cardiff, Bridgend, Neath, Carmarthen.

[purplepie]

Hi LadyLo7 I'm from Swansea. Was recently told by a doc in the lipid clinic I have this condition which came as a shock as I only went there to see what my cholesterol results were. Would love to meet up for a coffee with you and the other ladies.

[LadyL07 in reply to purplepie]

Hi Purplepie

Happy new year! I’m Sue, we haven’t all got together for quite some time and recently I had a bit of an accident so I’ve been laid up and not able to get around but I’m hoping I’m finally on the road to recovery (all be it very slowly) so will be able to get something arranged for the spring.

Are you on Facebook? Are you in any groups on there? Is it Lipoedema or Lymphoedema or lipo-lymphoedema that you’ve been diagnosed with? Do you have it in a specific area? I have lipo-lymphoedema and it’s mostly from my waist down although I do have some in my arms too.

Look forward to hearing from you

[purplepie in reply to LadyL07]

Hi Lady. So sorry to hear about your accident. I hope your on the mend now? I know how difficult it can be to arrange meet ups, - so many variables - but if theres any happeneing then do please let me know. I think it's just lipoedema. I didn't ask too many questions about it at the time as i didn't realise it was as serious as it is..He looked at my legs and feet and arms and did some pinching and prodding. then said i had lipoedema and he'd write to my doctor...I haven't had a chance to visit my doc yet.. i get so fed up of going over there TBH. I've always been bottom heavy, like having two diferent sized bodies joined in the middle.. but not sure how i got to be 56 without knowing about it. I just thought i was one of lifes naturally unlucky fatties. Apart from this i've also had fibromyallgia quite bad for the last 10 years and put the weight gain down to not being able to excercise anymore. Since reading about Lipoedema, a lot of things make perfect sense now. Wish i'd known about this years ago... the amount of times i've run the guantlet of disaproving medical health advisers who make judgements about my health based on my waistline as soon as i waddle through their door. Not to mention helpful friends and family trying to encourage me to continually diet and excercise. And i don't want to even think about the fortune i've spent on faddy diets and weight loss clubs. I even had a hypnotherepy gastric band fitted, for all the good it did- Had i saved the money on these quick fixes, i probably could have bought myself some real liposuction instead... Ahh well, hindsight eh! is a wonderful things. If you're ever at a loose end in Swansea and fancy a coffee without having to organise a meet up, look me up.. I'm in the Treboeth area but i do have transport.

Mel. ( purplepie )

[LadyL07 in reply to purplepie]

Hi again

I think it’s safe to say that we all have so much in common with regards to the looks, accusations, insinuations etc from family, friends and particularly drs who really should have known better. I was 45 when I was diagnosed and for me it was like someone had switched a light on and lifted a load off, I almost wanted to go around shouting ‘see I told you I wasn’t lying when I said I was sticking to your silly diet’ etc.

I’m in Caereithin so I’m literally just around the corner! Are you on Facebook? If so do you want to connect so we can discuss and maybe I can get a couple of our closer ladies/friends to meet up?

I’m on fb as Sue Lehane

[purplepie in reply to LadyL07]

HI, i've just found you on FB and sent a message to connect.. So good to know theres a fellow Lipo Lady so near to home.

[Sar20]

Hi! Is this group still going??

[Nikkipink30 in reply to Sar20]

Hi I’ve just joined

[Nikkipink30]

Hi I’m new just saw your thread, I’m under investigation at the mo, and would love to meet others with similar issues if anyone would like to, it feels very isolating, I’ve lost all confidence