Have I got lipedema?: Hi ladies, I’ve only... - Lipoedema UK

Lipoedema UK

875 members165 posts

Have I got lipedema?

Louise_g33 profile image
2 Replies

Hi ladies, I’ve only recently heard of lipedema after searching for unusual fat storage arms and legs on google. I’m now convinced I’ve got this disorder and will be making a GP apt ASAP but in the meantime, what do you all think? Thanks, Lou xx

Written by
Louise_g33 profile image
Louise_g33
To view profiles and participate in discussions please or .
2 Replies
Buzzytruk profile image
Buzzytruk

Hi there, sorry to hear you have this problem, I have it in both arms and legs. Not even, one each being a little worse than the other.

But nowhere near as bad as it could be.

Your picture shows us being very similar.,mine a little more.

Saw my Gp a couple of days ago and really theres not much can be done.... Apart from Liposuction which is rather expensive as its done as a private patient.

I have recently started to wear support tights 4 to 5 times a week, if only while shopping it helps a little. Not easy in this weather !!!

Do keep in touch, private message me if you like.

Best wishes

Jo. 😊

in reply to Buzzytruk

Hi,

I was diagnosed with Lipoedema at St George's Hospital by chance as my secondary Lymphoedema was not responding to treatments.

Have you looked at lipoedema.co uk ? It's a brilliant resource that offers lots of help and advice which is useful before you try and get a " formal" diagnosis. I have the typical " shelf" where my spine ends and my hips start, straight legs with a "bracelet " between leg and foot and very tender easily bruised legs and arms.

There is a first class learning module for health professionals by the way. More information about that is on the Lipoedema UK website.

They held their annual conference this week end but I didn't find the energy to go this time as I have been nursing my husband who died at the end of April.

They are really good however and highly recommended as they are packed full of sensible advice from some of the country's leading professionals and sometimes from overseas.

There is much to be done to help yourself by the way like exercising in

water.

Good luck with it !

Wendy

You may also like...

I have just been diagnosed with Lyphedema.How long will I have to wait for treatment

village approx 40 miles outside of Glasgow. Many thanks in advance for any help you can give me. xx

Hi I’m a newcomer to the site!

I’ve just recently even informed I have both lipoedema and lymphodema ( spelling may be wrong) any...

Not sure I belong...no diagnosis 😕

my leg described my lower leg as ‘heavy’ so I’m aware that something just isn’t quite right. I’ve...

Lipoedema restricts me in so many ways I don't know how to cope?

constantly shattered, my legs ache and I've now got fallen arches under my feet - very painful. I...