Hello from the Beneficiary Engagement... - Leukodystrophy Su...

Leukodystrophy Support

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Hello from the Beneficiary Engagement Officer at Alex TLC 😊

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Morning Everyone,

I just wanted to introduce myself. My name is Suzanne and I am the Beneficiary Engagement Officer with Alex TLC. I work closely with Karen the Support Services Manager, whom some of you may have had contact with on here or through Alex TLC.

I am happy to answer any questions you may have about the support we provide at Alex TLC. If you need any information or advice, then please drop me a message on here or email me at suzanne@alextlc.org.

Look forward to talking to some of you soon,

Suzanne

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If anyone would be interested in being involved in our Rare Disease Day 2021 video then please get in contact with me. The focus is to raise awareness of Leukodystrophy, with an emphasis on collectively, as a community, being strong. You can find out more by clicking on the link: fb.watch/3Hoqsc9cD6/ or dropping me an email at suzanne@alextlc.org

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