Hi, my name is Alisha. I’m a 33 year old carrier of ALD. My family found out about this disease when my brother Gary(Pine_Knot on here) started having major symptoms! Unfortunately he passed away from this horrible disease in May of this year at the young age of 35! I also have a 4 year old boy who my brother always said was his special little buddy! They had a lot in common being as they had the same disease and both had addisons too. At 4 Barrett has a MRI every 6 months and all have been good so far! Thank God!! For myself I’m not really showing any major symptoms just a little numbness in my toes.
New to health unlocked : Hi, my name is... - Leukodystrophy Ca...
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