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Leukodystrophy Carers
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18 year old Son Diagnosed with ALD

My son was just recently diagnosed with ALD and will be getting a Bone Marrow transplant soon. We are all very scared and lost right now and if you have any advice we would love to hear it.

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Hi, please join in this group for more up-to-date discussion and experience sharing :https://www.facebook.com/groups/169527343091772/.

I am an Ald carrier, and this disease is horrible.


Still waiting to be accepted. Thank you for your help.