Hello. I am Michael Conway, almost 50 years old, from Renfrew (near Glasgow Airport) in Scotland.
I have been seeing a neurologist for about five years. My symptoms are very bad balance, falling about is if I am drunk. Also I get pains in mu upper arms and legs sometimes. I have a particularly bad memory.
I received about 8 x MRI scans and 3 x Lumbar Punctures and an electrode test to my feet/lower legs and several very long fatty acid tests.
Last Christmas eve (2015), my neurologist thought I had MS, but in May/June, after more tests, told me I have ALD. I have now only to see my neurologist on an annual basis. I have two appointments coming up. Tomorrow (13/10/16) I've to go to a Genetics clinic and on 27/10/16, I've to go to a Endocrinology clinic.
As a side issue, my father had Motor Neurone Disease and my maternal uncle had Addison's disease.
What is your story?