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Leukodystrophy Support

195 posts •

8 years ago•4 Replies

Hello everyone. My name is Gary. I'm new to this site.

Written by

Pine_Knot

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4 Replies

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KazzyALD8 years ago

Hi Gary, welcome. My name is Karen. I am an ALD mum, my son is 28, and thankfully shows no signs of the disorder. He also, has Addison's Disease.

I'm showing mild signs of nerve damage in my legs.

Pine_Knot in reply to KazzyALD8 years ago

I also have addisons. I have good days and bad days(5 out of 7). I'm not able to walk on my bad days. Can your son walk?

KazzyALD in reply to Pine_Knot8 years ago

Yes, my son isn't showing any symptoms, thankfully. His Addison's has been kept under control, as well.

Hi Gary. Welcome to the group. I am a 39 year old male with AMN. I have some problems walking but don't have adrenal problems.

Angus

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