Posts - Leukodystrophy Carers | HealthUnlocked

Leukodystrophy Carers
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ALD Connect Community Support Telephone Conference Call for Cerebral ALD Patients, Families and Caregivers 5/22 @ 7 p.m. EST

I realize this is short notice but I received an ALD Connect Announcement regard...

Suffering!!????

Dies any of the women suffer from constant headaches?

ALD Conference Call for Families, Caregivers and Patients

I received this announcement from ALD Connect: We are excited to announce that ...

Help to be your wife or husband to live with an AMN?

Hello here I start I am since the end of February on the group I read the posts ...

Pregabalin & Gabapentin.

Hi everyone, i thought this was worth sharing. I only saw this myself today on F...

Sizures

Hello famillies,as i said in my first post,my son was recently diagnosed with AL...

What To Do

Hi Families! Again here with another question. What activities have any of you f...

Women Carrier Symptoms!

Hi I'm 42 and I am a carrier of ALD. I'm starting to experience tingling and nu...

New in fight with ALD

Hello everyone, My name is Ramona from Romania,my son was diagnosed recently wi...

New to health unlocked

Hi, my name is Alisha. I’m a 33 year old carrier of ALD. My family found out abo...

Symptons as an Adult Woman!

Hello everyone. Not only am I going threw my son having ALD, I am now start to e...

two kids diagnosed with ALD

I have two son's who have been diagnosed with ALD. One of them is 8 year old and...

Late onset

At 52, it’s challenging to deal with ALD.

ALD Life Impact Survey

Have you completed the ALD Life Impact Survey yet? Results will help us to impro...

How to get Lorenzo's oil?

Hello everyone I have 10 year son who is suffering with ALD, and I'm in Virginia...

Lorenzo Oil

Hi everyone We live with a wife in Scotland, but we have families in Poland. My ...

Newbies needing some advice 😊

Hi everyone. I’m new to this site (not new to ald, unfortunately my son Reuben w...

Flu 2108 spring

Three weeks flu. One week out of work. Three weeks with crutches. Not violent bu...

My son has ALD & has been diagnosed as severely anemic, are the 2 related ? He is waiting for an X-ray to see if that shows anything

Anemic low in iron

My Yearly ALD status check passed good!

One year passed after my last ALD status check and meeting with my neurolog. Le...

Newbie

Hi, I’m new to ALD as my son has recently been diagnosed. He’s 8. We’re thinking...

18 year old Son Diagnosed with ALD

My son was just recently diagnosed with ALD and will be getting a Bone Marrow tr...

ALD Parents Teleconference Support

I received notification from ALD Connect about an upcoming teleconference for al...

Robsupernova

Does anyone know how to get a hold of the member Robsupernova? He had some amazi...

New baclofen pump

So last Tuesday I got a baclofen pump implanted. I would like to know if anyone ...

drugs for 8 years old boy suffering ALD

Hello! My son a year ago was diagnosed with ALD. The disease progressed rapidly,...

Update

Hello. Again my name is Gary. The only movement in my legs are spasms. The stren...

An ALD carrier in Vietnam

Hi, I am new here. I am a ALD carrier from Hanoi Viet Nam. My brother died by AL...

Should daughters be tested....

Hello! 8 months ago my son was diagnosed with ALD. The disease progressed rapidl...

Hello - from Michael Conway

Hello. I am Michael Conway, almost 50 years old, from Renfrew (near Glasgow Airp...
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