I wish this were a more positive first post and I hope everyone else reading this who has or is involved with a blood cancer has a much more positive outcome but... My dad only has a few weeks, at best to live. He had myeloifibrosis (sorry if spelt wrong). It's transformed in the past couple of weeks to an acute leukaemia and yesterday his consultant told us there's nothing more that can be done for him. He's at home. He spends 98% of his time sleeping. I just wondered if anyone had any tips or personal experiences of how we can make this time any better for him. The palliative team at the hospital have sorted out his drugs so he shouldn't be in pain (he had knee pain, probably not related to the cancer, that currently 'just' means he's permanently exhausted). Just to know what you did / didn't do, what your friend or relative enjoyed. Obviously we have ideas but if I can find a clue of anything that'll make it easier, this post will be worth it.
He and we are desparate that he doesn't have to go into hospital again - he'd probably be taken to a&e at his local hospital (not the one, which is slightly further away where his consultant is), and that would be awful. He doesn't want to go to a hospice either (he's seen his friends in them and prefers home).
We're urgently trying to sort out home hospice care / Macmillan but we only put in a request on Tuesday (.he's gone downhill very quickly - he was 'OK' a week or so ago), but the Easter holidays are slowing things down - assuming they even have any capacity.
Sorry this is a bit of a ramble. Any helpful advice appreciated. We do have contact numbers at the hospital.