Any ideas?: Hi. I have joined this community... - Leukaemia CARE

Leukaemia CARE

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Any ideas?

Marilyn1959 profile image
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Hi. I have joined this community to seek some idea as to what to expect for my friend. He was diagnosed with ALL earlier this year. All very sudden. He went through chemo regimes and subsequent stem cell transplant two months ago. All bloods and recovery going well. Last bloods about a week ago - all fine.

Just heard he was admitted to hospital in Sussex, whilst taking a short break visiting family. He has today transfered to London hospital that he is under for leukemia care. His wife is saying he is experiencing sudden onset of a very similar pain as when he did prediagnosis. He does have type 1 diabetes which he has had since aged 17.

How likely, given treatment programme and blood results listed above, is it that the leukemia is back? Could this be sudden onset of rejection of stem cell transplant, though bloods have given no cause for concern? Any insight into what could be happening would be helpful, not for passing to my friend or his family, but for me to be prepared for possible outcomes. I have PMR and take steroids both of which can cause anxiety. My anxiety is worse when dealing with the unknown, hence my wanting to know possibilities and try to prepare for them. I belong to the healthunlockedPMR/GCA community which is a fabulous supportive group - hence why I am seeking info / insight from you guys / girls. Many thanks.

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Marilyn1959
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NicoleLeukaemiaCare profile image
NicoleLeukaemiaCareAdministrator

Hi there and welcome to the forum. Our haematology nurse Angie is on our helpline tonight from 7-10pm. She has many years experience in haematology and may be able to go through all your questions - the number is free to call and is 08088 010 444

Marilyn1959 profile image
Marilyn1959 in reply to NicoleLeukaemiaCare

Thank you Nicole. I will give Angie a call.

Marilyn1959 profile image
Marilyn1959

Update. My friend had a bone marrow biopsy yesterday and it has been confirmed the Leukaemia is back (even though bloods were fine 12 days ago?????). They are checking for the type of Leukemia. I am guessing that outcome will determine treatment options and prognosis. How can this happen so quickly from being told Leukemia is in remission, having stem cell transplant and blood tests all being fine????? Rant over!! (For now!)

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