Hi everyone I've recently been diagnosed with cll and tomorrow.....
Hi I wanted to follow up with everyone. I started the V&I clinical trial Oct 2017....
CLL is gone!!!!
Once a CLL patient always a CLL patient and I know there might be a chance of relapsing at some point but I'll stay positive and will beat th...
Chemo-Free Treatment Best Option for CLL Patients Under 70
There is good news in the advancement of chemo-free approaches to managing chronic lymphocytic leukemia, and I am thrilled to share it with y...
ibrutinib, opposite effect.
Our doctor is Dr. James Johnston in Winnipeg, Canada, and he is a CLL specialists and he said he hadn't seen this reaction and was going to t...
Breaking news form ASH conference: looks like Ibrutinib May be better than FCR for some patients
#ASH18 #LBA | A Randomized Phase III Study of Ibrutinib ( PCI-32765)-Based Therapy Vs. Standard Fludarabine, Cyclophosphamide, and Rituximab ...
Needing prayers - heading to emergency room with 101.6 neutropenic fever
Cll specialist called and told me to urgently go to hospital for Antibiotics in case of bacteria infection .... this is my first fever w cll ...
Potential unrelated donor found
Hi All, A bit of an update. My local transplant unit has advised that a potential unrelated donor has been found for me on the German bone ma...
Is Green Tea and Matcha powder same, similar?
Hello All, I've always experienced a benefit from simply drinking green. Over the course of my life, when I was a green tea drinker I had far...
Gazyva (obinutuzumab) treatment
My Doctor is recommending Gazyva ( obinutuzumab ) treatment for my CLL....
What a year - and some good news to end it
Hi all, Thought I would share some positive news from me after a pretty crazy year - if nothing else to get my head around it. Back in Januar...
My husband who is now 82 was diagnosed 8 yrs ago and has been on watch and wait. We are reasonably tough cookies, but the past 8 years of 3 m...
CAR-T update and more
Writing this with fludarabine and cyclophosphamide running through my PICC line to make room for the CAR-T cells on March 22. I have tried to...
CLLSA and Leukaemia Care Joint Response to NHS England regarding Ibrutinib Prescribing as per NICE TA
This is the letter sent to Professor Peter Clarke on 2nd July 2018 for the review of Ibrutinib prescribing. The recent decision by NHSE to re...
New 17P- w questions about EGCG and normal 2nd 17th chromosome
Hello, Thank you all for your insightful posts and support! I'm relatively new to this forum- diagnosed in April 2018 with 17P- CLL on abnorm...
Sorry not on for a while. I had to rush my husband into hospital yesterday....
Need help dosing turmeric and green tea for CLL
Diagnosed with CLL in October 2017 and the doctor said I don’t need medication....
Starting CAR-T therapy for my relapsing CLL
After consulting with my wife, my family, my closest friends and key supporters of the CLL Society, I decided it was best to again share deta...
cll w/ a twist - Stem cell
okay - been awhile - 8 years of cll without any great remission so i went to MSK since i hear good things....
I'm new to Essential Thrombocythemia
Is there anyone out there to talk about ET experience, doubts and futures? I was diagnosed this summer but I've probably had it at least 2 ye...
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