Hi everyone I've recently been diagnosed with cll and tomorrow.....
CLL and Vitamin C
I was thinking of getting some Vitamin C IV and read some posts from a few years ago that said vitamin C might overstimulate lymphocyte produ...
CLL; when is treatment?
I am a new to this site; My white count was discovered to be 14 by my PCP; she sent me to oncologist; who sent me for blood tests; they took ...
Need help dosing turmeric and green tea for CLL
Diagnosed with CLL in October 2017 and the doctor said I don’t need medication....
Was diagnosed thru a local hemotolgist through flow cytometry test , said would get sick sometime in the future, and to come back in 6 months...
Long term treatment for 11q
As some may know, I am 25 years old diagnosed with CLL 11q deletion. A traditional CLL patient where managing the disease is far less years....
Just diagnosed at 30
I was diagnosed today with sll and have no other idea of the staging/prognosis. I had a lymph node excision biopsy and fish test and will now...
Friend or not a friend??
Hi Folks, I was out with a friend this week, she is a bit or rather a complete health freak!!! Which I except, but she started spouting on ab...
Ibrutinib / Venetoclax
I thought if my numbers were ok and my symptoms weren't that bad that I would be on watch & wait longer....
UPDATE ON: Help! 31yr old newly diagnosed CLL.
We spent 2+hrs explaining everything anyone ever wanted to know about CLL. Anyway, our father ( mine and my brothers ) apparently has CLL, an...
What is happening?
The doctor said he has to find the reason of this low HGB, maybe the CLL has transformed to something else....
Trying to help an acquaintance who lives close to the Black Sea,in Georgia, who has just been told that her CLL has turned into B-PLL.
She was initially being treated for CLL and it appears that her CLL has transformed to PLL,according to her description....
Just Want to Cry!
On Saturday I went to collect my meds from the pharmacy. It's not too far to walk so I took my dog....
Road to a BMT... oops just got there
Last time you heard from me/us was when my husband Mark began failing on Ibrutinib in Feb. Little did we know that Cancer Care Ontario would ...
Chemo Might Be Next
I will have a lot of questions answered at the Center but also wondered if anyone went thru chemo can tell me if we get rid of CLL by going t...
Update to Specialist 1st visit
My hematologist said that as a triple negative and should there be no other obscure genetic mutations to explain my ET & MF I would be a cand...
Hello, I have just joined this group. I was diagnosed with myelofibrosis last early September,then 3 weeks later the tests showed I also have...
Response and Survival Rates for FCR and Ibrutinib
I'm asking the question what response and survival rates do we see with FCR and Ibrutnib given first line. Thus, especially for patients trea...
Scuba & MF while on Jakafi?
I am reading up and seeking advice from many quarters, however, MPN Voice, seemed like a very good place to start this next research project....
Ibrutinib as frontline??
Does anyone know why Ibrutinib is only available to CLL patients whose previous treatments have been unsuccessful? I've read posts on here wh...
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