lizzziep6 months agoPOPULAR
Yesterday a relative asked me to a coffee morning, I said unfortunately it coincided with my haematology appointment. She asked why I went to...
I'm new here
fran57paul4 months agoPOPULAR
I was diagnosed with Essential Thrombocythemia several years ago and since then have been diagnosed with Polycythemia vera....
Update to Specialist 1st visit
Cmg59352 months agoPOPULAR
My hematologist said that as a triple negative and should there be no other obscure genetic mutations to explain my ET & MF I would be a cand...
Scuba & MF while on Jakafi?
socrates_83 months agoPOPULAR
I am reading up and seeking advice from many quarters, however, MPN Voice, seemed like a very good place to start this next research project....
Joe5004 months agoPOPULAR
I would be really grateful those of you taking Ruxolitinib could tell me the benefits and problems they've experienced as I may be offered it...
Tonto15 months agoPOPULAR
Hi there mouselings, There is an excellent resource tool for anyone contemplating filling in the P.I.P assessment form by themselves. Firstly...
High biotin doses may interfere with some SERUM blood tests, e.g. thyroid, anaemia. Those on Ibrutinib please note!
AussieNeil2 months ago
[ u]Biotin supplements are commonly taken to reduce nail splitting for those on Ibrutinib therapy and it is regularly taken for other reasons...
Benboy108 months agoPOPULAR
Had my first Nplate injection today. Has anyone had this treatment,and is it successful ....
treatment refusal ruxolitinib
afonog8 months ago
HI, my partner was diagnosed with primary mf at the beginning of January. He was categorised as low risk....
Does anyone have trouble with bloat after eating?
Natura8 months ago
I think I have no HCL acid in my stomach. Even a cup of tea or soup bloats me....
Nobody called on skull mri
Lin762 months ago
I thought when i got home there would be call from nurse,saying skull scan negative. Nope no message....
Specialist - 1st visit
Cmg59352 months ago
She confirmed that I have ET & early MF, but the issue is I am what they call a triple negative for the commonly found gene mutations of Jak2...
Venetoclax is being considered for approval in Australia - Aussies, please support this application! Closing date 8th Feb
AussieNeil10 months ago
Venetoclax for relapsed/refractory CLL will be considered at the next Pharmaceutical Benefits Advisory Committee ( PBAC ) meeting in March, 2...
lbailey1090a year agoPOPULAR
Hello my name is Lisa . My doctor said that I have myeloproliferative neoplasms....
Myeloprolifative Neoplasms - Has Anyone Else Got One?
Senoritakazzaa year agoPOPULAR
Hi 😊 I'm Karen aged 50. I was diagnosed with Essential Thrombocythemia in 2009 its pretty rare so it is difficult to find anyone who has it...
New to the forun
Jimmyh296 months ago
Good afternoon to everyone out there I've recently been diagnosed with myelofibrosis Which I think is abbreviated to MF on the forum....
Leaking bone marrow??
Joe5003 months ago
I'm wondering if anyone can shed light on a red swelling I have on my leg. It came up quickly over a couple of days, is tender and my calf is...
Nplate causing "giant platelets"
HappyHopeful3 months ago
Had anyone else had " Giant Platelets : Present " on their labs after just starting Nplate? Anyone at all?...
Cindy14622 months ago
I am having my first lot of FCR and this is the first day at home with all my tablets!...
Vonn659 months ago
Hi I have just been diagnosed with essential thrombocythaemia and am taking hydroxycarbamide a little concerned about side effects ....
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