Lymph node biopsy to rule out Richtors
So I got the shock of my life. My hematologist wants to have me undergo a fine needle biopsy to rule out RS....
I have complained about one symptom since acquiring cll and that is fatigue....
ET and Fatigue
In the last few months I have been referred to another specialist and hoping that with two new genetic tests and a bone marrow biopsy there w...
Are you 11qATM CLL too ? what treatment works best? Please reply ASAP
My wife who loves me put me on this site to get details from others suffering from CLL. One week diagnosed i have an 11qATM deletion heterozy...
Hi everyone I've recently been diagnosed with cll and tomorrow.....
Worried about financial ruin...
As soon as I googled and realized how complicated the management of CLL was, I made an appointment at Moffitt Cancer Center which seems to be...
ibrutinib, opposite effect.
Our doctor is Dr. James Johnston in Winnipeg, Canada, and he is a CLL specialists and he said he hadn't seen this reaction and was going to t...
Chemo-Free Treatment Best Option for CLL Patients Under 70
There is good news in the advancement of chemo-free approaches to managing chronic lymphocytic leukemia, and I am thrilled to share it with y...
CLL is gone!!!!
Once a CLL patient always a CLL patient and I know there might be a chance of relapsing at some point but I'll stay positive and will beat th...
Breaking news form ASH conference: looks like Ibrutinib May be better than FCR for some patients
#ASH18 #LBA | A Randomized Phase III Study of Ibrutinib ( PCI-32765)-Based Therapy Vs. Standard Fludarabine, Cyclophosphamide, and Rituximab ...
Hi I wanted to follow up with everyone. I started the V&I clinical trial Oct 2017....
Little did I know by May 18th, I would be diagnosed with MF Intermediate 1. I have been asking about Ruxolitinib with my Haematologist but I'...
imbruvica/gazyva or imbruvica/venclexta
I am b-pll. i am p17 deletion and p53 mutated....
Bone Marrow Aspiration - I'm scared.
I'm having 2 bone marrow aspirations in 1 week for stem cell injections. Has anyone had an aspiration with no meds but just localized numbing...
Just received the 2nd set of blood tests from an un-connected complaint, for the cell markers conclusion to reveal I have CLL....
He has recommended a different tx approach for my Polycythemia Vera....
Is Green Tea and Matcha powder same, similar?
Hello All, I've always experienced a benefit from simply drinking green. Over the course of my life, when I was a green tea drinker I had far...
Has anyone been on the combination therapy of Venetoclax, Ibrutinib and Obinutuzumab?
I was wondering if I could hear from someone who has had the combination of Venetoclax, Ibrutinib and Obinutuzumab ( Gazyva ). My CLL is comp...
What a year - and some good news to end it
Hi all, Thought I would share some positive news from me after a pretty crazy year - if nothing else to get my head around it. Back in Januar...
So scared and new to this board
I’m scared. Petechiae ( tiny ) all over stomach and legs....
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