lizzziep in MPN Voice 4 months agoPOPULAR
Yesterday a relative asked me to a coffee morning, I said unfortunately it coincided with my haematology appointment. She asked why I went to...
I'm new here
fran57paul in MPN Voice 2 months agoPOPULAR
I was diagnosed with Essential Thrombocythemia several years ago and since then have been diagnosed with Polycythemia vera....
Scuba & MF while on Jakafi?
socrates_8 in MPN Voice 17 days agoPOPULAR
I am reading up and seeking advice from many quarters, however, MPN Voice, seemed like a very good place to start this next research project....
Joe500 in MPN Voice 2 months agoPOPULAR
I would be really grateful those of you taking Ruxolitinib could tell me the benefits and problems they've experienced as I may be offered it...
Tonto1 in British Lung Foundation 3 months agoPOPULAR
Hi there mouselings, There is an excellent resource tool for anyone contemplating filling in the P.I.P assessment form by themselves. Firstly...
Benboy10 in ITP Support Association 6 months agoPOPULAR
Had my first Nplate injection today. Has anyone had this treatment,and is it successful ....
treatment refusal ruxolitinib
afonog in MPN Voice 6 months ago
HI, my partner was diagnosed with primary mf at the beginning of January. He was categorised as low risk....
Does anyone have trouble with bloat after eating?
Natura in LUPUS UK 6 months ago
I think I have no HCL acid in my stomach. Even a cup of tea or soup bloats me....
Myeloprolifative Neoplasms - Has Anyone Else Got One?
Senoritakazza in Leukaemia CARE 10 months agoPOPULAR
Hi 😊 I'm Karen aged 50. I was diagnosed with Essential Thrombocythemia in 2009 its pretty rare so it is difficult to find anyone who has it...
Venetoclax is being considered for approval in Australia - Aussies, please support this application! Closing date 8th Feb
AussieNeil in CLL Support Association 8 months ago
Venetoclax for relapsed/refractory CLL will be considered at the next Pharmaceutical Benefits Advisory Committee ( PBAC ) meeting in March, 2...
lbailey1090 in MPN Voice a year agoPOPULAR
Hello my name is Lisa . My doctor said that I have myeloproliferative neoplasms....
Feeli f victamised
MelAidJack in British Lung Foundation a year agoPOPULAR
Hi interested in peoples opinions am I being too sensative or am I being victamised because of my health? I have worked for a agency since Fe...
New to the forun
Jimmyh29 in MPN Voice 4 months ago
Good afternoon to everyone out there I've recently been diagnosed with myelofibrosis Which I think is abbreviated to MF on the forum....
Anyone heard of Promedior?
Jennifer1974 in MPN Voice a year agoPOPULAR
It was originally developed for pulmonary fibrosis but this trial is for myelofibrosis ( wondering if it could be applicable to other mpns as...
Leaking bone marrow??
Joe500 in MPN Voice a month ago
I'm wondering if anyone can shed light on a red swelling I have on my leg. It came up quickly over a couple of days, is tender and my calf is...
Vonn65 in MPN Voice 7 months ago
Hi I have just been diagnosed with essential thrombocythaemia and am taking hydroxycarbamide a little concerned about side effects ....
Nplate causing "giant platelets"
HappyHopeful in ITP Support Association a month ago
Had anyone else had " Giant Platelets : Present " on their labs after just starting Nplate? Anyone at all?...
Nearly a Day on the Beach.
Don-1931version in British Lung Foundation 5 months ago
I can not walk now very far My joints are all worn out. I live near sea and sandhills....
6 months post mini Allo transplant update
Ausrine in CLL Support Association a year ago
Hi everyone, I get a lot of messages from people asking how am I doing post mini allo transplant. I'll reply here so everyone can see it....
The Truth About Cancer encore
Carrot_Top in CLL Support Association 10 months ago
Ty Bollinger had several integrative and alternative doctors at a live symposium back in September. There is an encore presentation this Frid...
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