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apomorphine, anyone on this?
Hi all, was offered apomorphine with pump not injection. is anyone using this and has it made a difference i know everyone is different just trying to get a bit of perspective before i start it? been having issues with oral forms of medication either dyskinetic on or cant move off not much in the middle
Hi all, was offered apomorphine with pump not injection. is anyone using this and has it made a difference i know everyone is different just trying to get a bit of perspective before i start it? been having issues with oral forms of medication either dyskinetic on or cant move off not much in the middle
Todd-pw
in
Cure Parkinson's
7 days ago
Meds not working well again
My PD husband and has been taking 4 or 5 sinemet 50/250 CR for about a year and started using neuropro patch 2mg 6 months ago. He was on madopar for several years prior, but it was never right for him. Suddenly it seems his meds aren't working and the pd symptoms are severe again. The neurologist
My PD husband and has been taking 4 or 5 sinemet 50/250 CR for about a year and started using neuropro patch 2mg 6 months ago. He was on madopar for several years prior, but it was never right for him. Suddenly it seems his meds aren't working and the pd symptoms are severe again. The neurologist
PDsux_10
in
Cure Parkinson's
9 days ago
Addiction to Sinemet
I am a 79 year old widow and have been traveling the maze of Parkinson's since 2014. It seems like as soon as I find a neurologist I like they either move or retire. I have to travel 100 miles to my movement specialist. I have become very disappointed with him in the last couple of years. I'm lucky
I am a 79 year old widow and have been traveling the maze of Parkinson's since 2014. It seems like as soon as I find a neurologist I like they either move or retire. I have to travel 100 miles to my movement specialist. I have become very disappointed with him in the last couple of years. I'm lucky
tgargoyle
in
Cure Parkinson's
17 days ago
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Mucuna and carbidopa alone?
I will be starting to experiment with 1 NOW brand Mucuna capsule, and carbidopa alone. I am not taking Sinemet yet, as I’m trying to take a more natural approach. Has anyone taken this combo, and if so, could you please give me any ideas of dosages of carbidopa to take with one mucuna capsule? (Or Parts
I will be starting to experiment with 1 NOW brand Mucuna capsule, and carbidopa alone. I am not taking Sinemet yet, as I’m trying to take a more natural approach. Has anyone taken this combo, and if so, could you please give me any ideas of dosages of carbidopa to take with one mucuna capsule? (Or Parts
Ob6842
in
Cure Parkinson's
17 days ago
How to start taking Mucuna
Hello nice people , thanks to all the ones that replied to my previous message. In the meantime I found this website that gives some historical background, comparison and explanation about Mucuna , also vs Sinemet , how to start taking it etc etc. Written by a Spanish neurologist researcher in London
Hello nice people , thanks to all the ones that replied to my previous message. In the meantime I found this website that gives some historical background, comparison and explanation about Mucuna , also vs Sinemet , how to start taking it etc etc. Written by a Spanish neurologist researcher in London
LorenzaS
in
Cure Parkinson's
18 days ago
Sinemet Information
Useful links for Sinemet usage. Most relevant :: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3228622/ Probably outdated : https://www.medicalnewstoday.com/articles/drugs-sinemet-dosage
Useful links for Sinemet usage. Most relevant :: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3228622/ Probably outdated : https://www.medicalnewstoday.com/articles/drugs-sinemet-dosage
pdpatient
in
Cure Parkinson's
20 days ago
Anyone experience a wearing off cough/shortness of breath?
Hi everyone, does anyone experience a ‘wearing off’ cough or shortness of breath? Not much info out there other than it is not determined if it is the meds, PD, or wearing off. Hubby is experiencing this the last few weeks and it seems to happen during wearing off, it’s an awful cough and tight chest
Hi everyone, does anyone experience a ‘wearing off’ cough or shortness of breath? Not much info out there other than it is not determined if it is the meds, PD, or wearing off. Hubby is experiencing this the last few weeks and it seems to happen during wearing off, it’s an awful cough and tight chest
PEB69
in
Cure Parkinson's
23 days ago
Medication induced dementia
My WWP was diagnosed in 2019 and she has developed dementia. She recently saw her Neurologist and she asked to have an MRI scan to exclude any other conditions that may be mimicking the dementia. I was not aware that there are certain conditions or medications that can mimic dementia so I prompty
My WWP was diagnosed in 2019 and she has developed dementia. She recently saw her Neurologist and she asked to have an MRI scan to exclude any other conditions that may be mimicking the dementia. I was not aware that there are certain conditions or medications that can mimic dementia so I prompty
Rafiki2
in
Cure Parkinson's
1 month ago
? about stiffness, I may have hit my peak🥺
Hey guys, I have been diagnosed for 2 years now and had a wake up call. I was stuck in a hotel and not out doing much moving. Then I had a chance and walked a lot. When I stopped I could barely sit down, the pain was significant. When I tried to stand it was very difficult. Back to the hotel, same thing
Hey guys, I have been diagnosed for 2 years now and had a wake up call. I was stuck in a hotel and not out doing much moving. Then I had a chance and walked a lot. When I stopped I could barely sit down, the pain was significant. When I tried to stand it was very difficult. Back to the hotel, same thing
BigTexan
in
Cure Parkinson's
1 month ago
Have someone tried Radagiline
I had PD for 5 years, now, have Dystonia and Dyskinesia after took Sinemet, Doctor asks me try Rasagiline, I worry that I take too much med. Dose anyone have experience of Rasagiline?
I had PD for 5 years, now, have Dystonia and Dyskinesia after took Sinemet, Doctor asks me try Rasagiline, I worry that I take too much med. Dose anyone have experience of Rasagiline?
Grandsonlover
in
Cure Parkinson's
1 month ago
Seeking Rytary experience and feedback
I'm switching from sinemet to Rytary because of the fewer doses throughout the day. I'm struggling with the morning dose. It makes my off time worse and I end up taking 1 sinemet after 1 - 2 hours to relieve symptoms (primarily slow movement and rigidity). The Rytary seems to be effective after my
I'm switching from sinemet to Rytary because of the fewer doses throughout the day. I'm struggling with the morning dose. It makes my off time worse and I end up taking 1 sinemet after 1 - 2 hours to relieve symptoms (primarily slow movement and rigidity). The Rytary seems to be effective after my
al315
in
Cure Parkinson's
1 month ago
Macuna Pruriens capsules
Hi all, just wondering if anyone has experience of using these capsules, 700mg macuna pruriens. https://www.macudopa.com/ Currently I take 1 +1/2 Sinemet 3 x daily but I find it doesn’t completely stop my tremor (left hand and leg/foot). I’m only recently diagnosed and feel I’m already dependent on
Hi all, just wondering if anyone has experience of using these capsules, 700mg macuna pruriens. https://www.macudopa.com/ Currently I take 1 +1/2 Sinemet 3 x daily but I find it doesn’t completely stop my tremor (left hand and leg/foot). I’m only recently diagnosed and feel I’m already dependent on
Lamadre
in
Cure Parkinson's
1 month ago
Selegiline - Noticeably improved symptoms
My new neurologist started me on Selegiline 10 mg/day. In two weeks I reduced my Sinemet from two pills per day to one. My tremor is much calmer and I feel more clear. So far no negative side effects and I take the first 5 mg on an empty stomach.
My new neurologist started me on Selegiline 10 mg/day. In two weeks I reduced my Sinemet from two pills per day to one. My tremor is much calmer and I feel more clear. So far no negative side effects and I take the first 5 mg on an empty stomach.
Armyman
in
Cure Parkinson's
1 month ago
Onset of severe tremor
My wife was diagnosed with PSP late 2021.She broke her hip in early February whilst taking part in a PD Warriors exercise class. She has been transferred to a Rehab Hospital. Progress has been slow but positive with he walking with a U Step and practicing on the stairs on Friday. I was called to the
My wife was diagnosed with PSP late 2021.She broke her hip in early February whilst taking part in a PD Warriors exercise class. She has been transferred to a Rehab Hospital. Progress has been slow but positive with he walking with a U Step and practicing on the stairs on Friday. I was called to the
Wombatz
in
PSP Association
1 month ago
Pramipexole
I was diagnosed with PD ten years ago, bradykenesia, facial mask, no left arm swing and now both aren't in time, no tremor. Have anxiety/looping thoughts and general low mood. Have a physical job and have been able to carry on but this year festination developed, walking often turns into running short
I was diagnosed with PD ten years ago, bradykenesia, facial mask, no left arm swing and now both aren't in time, no tremor. Have anxiety/looping thoughts and general low mood. Have a physical job and have been able to carry on but this year festination developed, walking often turns into running short
grower
in
Parkinson's New Zealand
2 months ago
Little tablets 🎶
Going through the medicine routine this morning I found myself making up a song - If you want to sing along it’s to the tune of “Little boxes” 🎶 Little tablets in the pill box Little tablets getting hard to swallow Little tablets, five compartments Little tablets every day Little tablets in
Going through the medicine routine this morning I found myself making up a song - If you want to sing along it’s to the tune of “Little boxes” 🎶 Little tablets in the pill box Little tablets getting hard to swallow Little tablets, five compartments Little tablets every day Little tablets in
Bergenser
in
PSP Association
2 months ago
Side effect of Sinemet
- [ ] I am 70 years old,was diagnosed PD 5 years ago. The first 4 years, I was OK with Sinemet as 100/25, 3 times a day. But from last Summer, after taking the same amount of Sinemet 30 minutes or one hour, my left body got Muscle tightness and serious dystonia of left foot and shoulder until off time
- [ ] I am 70 years old,was diagnosed PD 5 years ago. The first 4 years, I was OK with Sinemet as 100/25, 3 times a day. But from last Summer, after taking the same amount of Sinemet 30 minutes or one hour, my left body got Muscle tightness and serious dystonia of left foot and shoulder until off time
Grandsonlover
in
Cure Parkinson's
2 months ago
Sinemet has saved my life, for now.
Great depressive crisis last night with accelerated breathing, tremors, stiffening. When you have no one competent to share your condition with and have some comfort, it is dangerous not to have Sinemet at hand. I had to run and get it while I was still sane enough to avoid taking another kind of pills
Great depressive crisis last night with accelerated breathing, tremors, stiffening. When you have no one competent to share your condition with and have some comfort, it is dangerous not to have Sinemet at hand. I had to run and get it while I was still sane enough to avoid taking another kind of pills
michelagvolpe
in
Cure Parkinson's
2 months ago
Off Dyskinesia-anyone else have it? What's your fix?
Approximate 11 years into taking sinemet my pharmacy started only carrying generic versions. Which I'd when I started experiencing dyskinesia when the Carbidopa/levadopa started to wear off. And was told snd treated by a movement specialist that I was over medicated and attempted to reduce my dosage
Approximate 11 years into taking sinemet my pharmacy started only carrying generic versions. Which I'd when I started experiencing dyskinesia when the Carbidopa/levadopa started to wear off. And was told snd treated by a movement specialist that I was over medicated and attempted to reduce my dosage
YOParky
in
Cure Parkinson's
2 months ago
Parkinson sufferer looking insomnia cure
I was diagnosed with Parkinsons about 3 years ago … I am currently on no medication but for the last few months I have been suffering from chronic insomnia and now it’s so bad I only get about 1 hour of rest per night … I am looking for advice on any medication people found helpful or any tips that helped
I was diagnosed with Parkinsons about 3 years ago … I am currently on no medication but for the last few months I have been suffering from chronic insomnia and now it’s so bad I only get about 1 hour of rest per night … I am looking for advice on any medication people found helpful or any tips that helped
MgtMc
in
Cure Parkinson's
3 months ago
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