Did you know that Juvenile Arthritis is techni... - JIA-at-NRAS

JIA-at-NRAS

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Did you know that Juvenile Arthritis is technically a medical emergency?

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If untreated, it can cause permanent damage to a child or young person’s joints. Watch this video from Dr Magliano to find out what the early symptoms of JIA look like and what you need to do about it. Don’t Delay, #ConnectToday.

youtu.be/VsvnmveaP8I

#WorldArthritisDay

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I found this group by accident and thought I would comment as a sufferer at a less than tender age. I was diagnosed "sorry old boy, but you have Osteo Arthritis, premature old age" was the statement by the consultant, I was 12 years old and remember it well. Back in those days you either had Rheumy or Osteo, JIA was unheard of. I had clicking joints from when I was 8 YO and my mum took me to the GP when it was getting much worse, she had put it down to growing older. Unfortunately, as I discovered recently, the GP did not enter onto the medical card, just put all the consultant letters into the wallet and they have since gone missing, so did the diagnosis which would now be JIA, I spent 2 years with monthly visits to a now closed hospita and long gone consultant. In recent years I have been diagnosed with a multiple of symptoms in their own right, I was not happy with that, even more so when I was diagnosed with F.M. which I know all about as I used to care for a young man that had it. It put me on a mission to find out exactly what was wrong with me and not 6 new medical conditions within a space of 2 years. After 2 weeks of solid daily research I finally came up with the answer and glued all the symptoms together under one heading, Enthesitis, I presented that to my 5th consultant who confirmed that my decades of getting individual symptoms and the final years when I got many was correct, their failings had been down to the missing diagnosis when I was younger, I sent emails to various organisations to track down the old wallet cards and have recently discovered that the original 1964 hospital documents were not in the archives, but destroyed. My GP did send me for an xray of my feet and had to admit that missings records or not I did have it at an early age. My research even extended to finding specialists, only 2 in the UK and both in Paediatrics, not much use to me in my 60's. I now know that it is a genetic trait, albeit only in myself and my siblings not parent or grandparents. If anyone wants to know what else could develop then please contact me or post a comment here and I will post into this thread with a reply.

Steve

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