Jakafi weight gain and increased appetite
Was wondering if this is common...
Immune system compromised?
Hello, all. Last week I developed a bad sore throat and headaches....
Would you argue to switch to Jakafi even if HU is working OK ?
Is there anyone here who would argue for moving to Jakafi even though HU has worked well for the patient ? If yes then why ?...
MF with falling Hb: what drugs to go to next?
Hi guys, I have MF, platelets fine, whites a bit high ( 23 ), Hb dropping, now 90....
Myelofibrosis and using medical CBD/ marijuana.
I was diagnosed with Myelofibrosis in 2015 I have both JAK viruses. Gulf War Veteran struggling with PTSD/Anxiety, insomnia and severe arthri...
Weight gain and Jakafi 20mg
needing to know how much weight is gined while on Jakafi 20mg...
My spleen grew 4 cm recently and the pain is unbearable! Does anyone else have this issue?...
Polycythemia and Jakafi
I have had ET for 13 years and then PV for a year. I am a 74 YO white male....
High AST and alt levels
Hello, all, I just received a copy of my blood chemistry I had last week and it said my AST and AL T levels are high. Of course, I didn’t kno...
Worst 48 hours ever
Hi everyone I am currently on the jakafi trial for ET at guys and have Been feeling unwell for about a week headaches and sore shoulder, two ...
Cost of Jakafi
I went to my doctor yesterday and since I’ve had hives and burning of the skin feeling hot he is going to try to switch me to Jakafi. The cos...
Jakafi side effects
Hi everyone, I’m 62, diagnosed w et about 12 years ago, pv a few years later. Terrible itching, esp in high temperatures, was driving me craz...
Has anyone on here taken Jakafi and if so what results and side effects have you had?...
Hi all! I would love your input please with regards to my hematologist is considering change of my meds from Hydrea to Jakafi....
Problems with the sun/heat
I used to love the sun when I used to live in southern Italy it got to the forty's in the summer but since I changed years ago from hydrea to...
hip replacement with jakafi controlled polycythemia
I am 71 years old. for a year I have had worsening troubles with my hip....
Links to latest research
I thought it would be easier if I grouped all the links I’ve posted into one thread. Imo it’s all encouraging and uplifting....
Hi Bone Marrow lymphoma cancer
Hi my niece was diagnosed with tjus will Jakafi help her thanks...
MF, Jakafi, and Osteosclerosis
Hi everyone, I was diagnosed with MF post PV since 4 months, in my last BM biopsy it states MF3 for bone fibrosis and the Osteosclerosis is o...
Anyone with Post ET/MF & Budd Chiari?
I'm 50 and was diagnosed with ET at 22. I took Hydroxyurea and Agreline ( sp?...
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