So I went to the hematologist today and for the first time in years my platelets were at normal levels. But my anemia is getting worse....
Immune system compromised?
Hello, all. Last week I developed a bad sore throat and headaches....
CURCUMIN? – IS IT THE NEXT BEST THING...?
Post by MPN-MATE Admin » Wed Sep 25, 2019 10:29 am Hey all my MPN colleagues & friends... Thought that you might all enjoy a quick scan of th...
Jakafi weight gain and increased appetite
Was wondering if this is common...
So, I finally had my appointment with my hematologist to diagnose me after all my test the last two weeks. She says my ET has progressed to p...
I have stage two MF. 72 years old....
Help with anemia
I have Myelofibrosis with hemolytic anemia. Haven’t started Jakafi....
Diagnosed with myelofibrosis on 10/17. Began jakafi 3 weeks ago....
Flu vaccine while taking 20mg Jakafi
Has anyone here gotten the flu vaccine this year while on 20mg Jakafi...
Results from hematologist
Hello, all. Yesterday I had my six week check up with my hematologist....
Kidney infection and jakafi
Hello, all, So this past weekend I went to the emergency room because of severe lower back pain. It came on suddenly two nights before but I ...
I’ve had Polycythemia Vera for 10 years. Dr. suspects it is turning into Myleofibrosis
Recently my hematologist felt like my polycythemia vera May be changing into Myleofibrosis. I also had a bone marrow biopsy that came back “ ...
Would you argue to switch to Jakafi even if HU is working OK ?
Is there anyone here who would argue for moving to Jakafi even though HU has worked well for the patient ? If yes then why ?...
New meds for Myelofibrosis
Hello, all. So I just received my first shipment of a new medication called Enribic....
Extensive body heat.
Anyone with Myelofibrosis on Jakafi experiencing occasional internal body heat like if you are burning inside?...
Shortness of breath
Hello, all, As some of you know, I’ve had ET for 11 years which progressed to PV about 3 years ago....
MF with falling Hb: what drugs to go to next?
Hi guys, I have MF, platelets fine, whites a bit high ( 23 ), Hb dropping, now 90....
Myelofibrosis and using medical CBD/ marijuana.
I was diagnosed with Myelofibrosis in 2015 I have both JAK viruses. Gulf War Veteran struggling with PTSD/Anxiety, insomnia and severe arthri...
High AST and alt levels
Hello, all, I just received a copy of my blood chemistry I had last week and it said my AST and AL T levels are high. Of course, I didn’t kno...
Polycythemia and Jakafi
I have had ET for 13 years and then PV for a year. I am a 74 YO white male....
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