Has anyone on here taken Jakafi and if so what results and side effects have you had?...
Please pardon my ignorance but trying to understand the significance of JAK2. First question is when some posters here say they are JAK2 -ve,...
Fascinating drug comparison table
This has been posted on MPN-Net, not seen it before. Since every specialist seems to have a different viewpoint I’m not sure how reliable it ...
Scuba & MF while on Jakafi?
I am reading up and seeking advice from many quarters, however, MPN Voice, seemed like a very good place to start this next research project....
Back from my trip to SE Asia (brief update)
However, I am now on 20mg bd and my platelets are still way too high ( 855 ), while my Hg & Ht are dropping & I have become quite anemic as a...
All about me and my Myelofibrosis
Hi all my name is Peter, I live in Western Australia and I was diagnosed with ET in 2010. I questioned the diagnosis when it did not appear t...
Minimal Residual Disease or Cure in MPNs? Rationales and perspectives on Combo Therapy with Interferon-alpha2 and Ruxolitinib
Cutting edge therapy for PV - MF patients who do not respond to Jakafi or Pegasys alone - bit.ly/2tBjHVs...
Wondering why in this country that if you work you get less? My grandson had a job and was on his way to marriage and a new home when he beca...
Anyone heard of Promedior?
It was originally developed for pulmonary fibrosis but this trial is for myelofibrosis ( wondering if it could be applicable to other mpns as...
Initial weight gains & Higher platelet counts on Jakafi???
Happy New Year fellow MPN-ers... :)...
Blood platelets still too high...?
My diagnosis was changed from ET to Myelofibrosis ( CALR+) in late December 2016, and I have been taking 20mg x2 per day of Jakafi ( along w/...
Hi I'm Jplsuper and I have been fighting MPN since 1988. The best I have felt has been taking Jakafi....
SCT go ahead
Hi MPN friends, I just wanted to let you know that I will be starting the process of a stem cell transplant next weds 22 June. I live in Fran...
Just started Pegeses/Interferon
Hello all, I just started this drug Pegeses /Interferon, also taking 5 mg of Jakafi twice a day. I have MF 2-3, JAK+....
How to get Jakafi paid for when insurance denies it.
Does anyone every get denied Jakafi from their insurance company and eventually get it approved? Does anyone not ever get it approved?...
Here's what the BMB said
I met with my CLL and MPN experts this past week to learn the results of my bone marrow biopsy....
What the BMB Result Said
BMB is next for me!
Getting bone marrow biopsy next week ( have had a few in the past ) to see what's up with my platelets, genes, and white blood count....
First Time MF Poster
Twelve months ago, following declining red blood cell counts and a bone marrow biopsy, diagnosis of myelofibrosis was made. I initially start...
Hgb and transfusions
I have been on Jakafi since the end of September. I am now needing blood transfusions every 3 weeks, is there anything I can do to keep my hg...
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