ITP Support Association

has anyone tried papaya leaf??

im here lying in a hospital bed with a count of 4 hooked up to ivig and after being put back on predisolone 75 mg yet again. i have been looking up alternative therapies. came across info on papaya leaf - i know i take alot on the internet with a pinch of salt but there seems to be alot of info on papaya leaf and its positive effect on itp. has anyone used it?

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11 replies

    kjkoerner
    kjkoerner

    Yes, I have tried it. The extract liquid and the teas. I did get caught into the potential that it might help. While it did not work for me using for about 2 months I am still a strong believer that the cure for ITP lies with the right food or combinations of foods or natural remedies. Finding that combination is the issue. I have read a lot on the "potential" causes of ITP and it seems to be more environmental than anything else. Something we are exposed to or have eaten that triggered ITP or our bodies to destroy our blood cells. The reversal is eliminating what ever that is that we have exposed ourselves to and easting the right combinations. The answer varies with all of us. Like a combination lock not know the combination to open. I would say try it, you have nothing to loose, but do not be discouraged if it does not. It seems to work for some and may even work for me IF I knew what else to combine with Papaya. I have also heard that a gluten free diet can work as well. Have not tried as that is a difficult one to do. I do also believe avoiding all of the processed foods as possible as the chemicals in those processed foods can be part of the issue. At worse you may be more healthy and strong to fight this crappy ITP. Good luck and hope the IVIG helps. I have found unfortunately over the past 2 years that prednisone is my friend and being on it helps but I have the difficulty of side effects and withdrawals going off. Keep fighting, it is worth it!

    doctor
    doctor

    very true kjkoemer.
    itp is a complex disease and still the researchers are trying to find out the cause.
    There could not be one single causative process, hence the cure also would not be simple one single drug like a steroid or methotrexate or xolair or dapsone, nor there would be a single surgical cure like the removal of the spleen.
    The answer could be immune modulation and not suppression.

    doctor
    doctor

    very true kjkoemer.
    itp is a complex disease and still the researchers are trying to find out the cause.
    There could not be one single causative process, hence the cure also would not be simple one single drug like a steroid or methotrexate or xolair or dapsone, nor there would be a single surgical cure like the removal of the spleen.
    The answer could be immune modulation and not suppression.

    ktaruba
    ktaruba

    My 15 year old son was diagnosed in Dec. He has been on papaya for 6 weeks. When he started he was falling about 15k per week. After the first week he went up 20k so I was a bit excited. Since then he has really not moved. He has been in the mid 60s for 6 weeks with the papya. So I am not sure if it helped. If you go on amazon there are a lot of good reviews, but I would be curious to see if people feel the same. We are still taking it but about half the amount and counts have remained steady. I think kjkoerner is exactly right! Good luck!

    NickyD
    NickyD

    I tried Papaya leaf and found it expensive and ineffectual. NickyD

    AnthonyHeard
    AnthonyHeard ITP Support Association

    Sadly Papaya leaf, like all alternative medicines is unlikely to work and they may actually do more harm than good so be very careful what you take. ALWAYS discuss anything that you are thinking of taking with your doctor/specialist before you take it. Any increase in platelet count due to taking Papaya leaf will likely as not be complete coincidence and nothing to do with the actual Papaya leaf. I am sounding negative but the bottom line is that the leading experts in ITP would have already suggested it if Papaya Leaf were any use. I certainly agree however that a balanced, healthy diet with plenty of fresh fruit and veg and mimimal processed foods will help albeit not cure ITP. Things to avoid however are Ginseng, Quinine (products that contain Quinine include Tonic Water, Bitter Lemon drinks), Aspirin, Ibuprofen.

    Lynnek
    Lynnek

    I've read about papaya extract but never tried it. I've also read about Tawa Tawa leaves. It is used in Philipines to treat Dengue feaver (a blood disorder which affects clotting carried by insect) there'd a lot to be said about native remedies. I wish NICE would look favourably at these products.

    CamdenGirl
    CamdenGirl

    I agree with Anthony that it doesn't work. I don't agree that avoiding quinine is necessary at all. It is a very special type of thrombocytopenia that is triggered by quinine and nothing to do with ITP proper.

    I believe that science has shown that our problem is one of defective B or T cells or some other part of the cell making process and before long drugs will be made that will correct it easily.

    doctor
    doctor

    hi trinag
    i donot know whether papaya leaves work or not but there are certain herbs , the extract of which does work.
    if u live in India then contact me at arunnirula@yahoo.com.
    as these extracts are in liquid form they cannot be sent out through courier services

    bjcavite
    bjcavite

    I am a 59 year old male from the Philippines and I was diagnosed having ITP on December 20, 2013 when my platelet dropped to a very low level of 3 counts vs normal level of at least 150. By then, I have patches of hematomas inside my mouth lining, plus a blister of blood in my inner lips and bruises in my inner knees. Add to these are pin-like red spots in my lower extremities. Initial impression was dengue, but of course my team of doctors later narrowed it to ITP.

    I was outright given a shot of steroid meanwhile availability of my AB+ blood plasma is being sourced out. Before the night was over, a 5-unit concentrated platelet was transfused in me. With the steroid and the blood plasma, my platelet was only elevated by one count higher (from 3 to 4 counts). And from 4, this later rose to 6, through continued steroid (Prednisone). And with this very slow progress, I was then subjected to a four-day IVIG drip at a dose of 2mg per kg body weight (or, 160mg/day for my 80kg body). Meanwhile, daily dosage of Prednisone also continues.

    The IVIG has dramatically elevated my platelet back to normal level during the 4-day drip process. From my platelet of 6 counts, this was raised significantly to 29 after my Day 1 of IVIG. And this was followed by a platelet count of 80 on Day 2; 146 on Day 3; and finally 240 on Day 4. This was the best Christmas gift for me. I was home from the hospital before Christmas Day was over. Yes, we spent the Christmas Eve as a family in my hospital room, and this rising platelet count brightened up further the mood of the Season.

    I was on the weaning down process of Prednisone after my hospital confinement, and before my first follow-up routine on January 2, 2014 with my hematologist, my platelet rose to a high of 315. I was in Cloud Nine during this period. I was confident that I was heading to a complete cure of ITP. From a 70mg daily dosage, I was lowered to 60mg thereon, and a 10mg drop every 2-weeks, thereafter.

    However, this high feeling in me suddenly collapsed like a bubble when on my 2nd routine check-up on January 16, resulted to sudden dive from 315 platelet counts to 179. This is still within normal range, but I fear that the trend may continue and may result again to another depleted platelet level of less than 5 counts. This is where papaya leaf extract came into the picture. I was urged by friends and family to try this, as this is a popular known local remedy for dengue. And the result is accordingly always on the high, just like the other popular local herb, Tawa-Tawa. And I did it through young sprouted leaves from papaya tree, blended them and ingesting all the extracts. I tell you, no one will ever like the taste!

    With the papaya leaf extract, my platelet rose to 240 on Jan 29, and although quite lower (but still above 200) at 204 on Feb 10. I only took the papaya leaf extracts a day or two prior to my CBC blood draws. In between, I shied away from animal proteins as suggested by my readings on this "leaky-gut" thing. I informed my hematologist of my Papaya leaf extract therapy when I had my routine checkup with him yesterday; he has no violent reaction to this, although he took note of it in my case file. He is a non-believer of probiotics and their likes, as he claimed.

    Should I say, does papaya leaf extract work for ITP? In my case, I can say YES, but of course, my case may not be exactly the same with yours, trinag or with the others.

    God bless!

    • Last edited by bjcavite
    Cylalala
    Cylalala

    My one year old daughter was diagnosed with ITP and low white blood cells count (4) after immunisations. I didn't like the idea of the steroids and went all herbal instead. Oily fish, green leafy veggies and soya (all organic) - and very important Papaya Leaf Extract - 5ml 5 times a day as well as fresh papaya as a smoothy. Our blood cells rocketed within 3 weeks! I continued for a year - never had to go back to hospital. She is now turning 5 years old and very healthy.

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