TAVALISSE FOR ITP

[Painting4u]

Has any one taken TAVALISSE for ITP? I have just started the medication June 16, 2022.

[Sachmo16]

I was on the trial for it - on it for 5 years and it worked. I was then taken off it suddenly. Not happy! It’s not licensed here - not sure where you are but hoping it will be available in uk soon

[Painting4u in reply to Sachmo16]

Thank you for your reply. My platelets are at 2 for the last month. I was diagnosed in Jan. 2019. Lot of ups and downs. Thank you again. I am from the United States I hope you will be able to receive the medication again.

[Mesd]

Hi there I am on a trial of this drug at the moment, on a few occasions my levels have risen to normal but unfortunately crashed later. I'm hoping this will help me and the trial can continue

[goldylockz1]

I took it here in Montreal Canada but sadly it didn't work for me and I had horrible side effects. My blood pressure went extremely high and I developed a rash I'm still trying to get rid, 8 months later.But...everyone is different! I sincerely hope that it works for you 🙏

[Tdeller89]

I take doptlet it seems to work well I do have a lot of side effects. My count is still very low but not as low as it would be without it.

[Mesd]

I have been taking it since April, started with the 100mg dose now on 150mg along with my Romiplostim of 750mcg I have had various results but seems to be working