gettting to know: is ny 1 from... - ITP Support Assoc...

ITP Support Association

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gettting to know

Platelet4000 profile image
21 Replies

is ny 1 from hyderabad india here.?

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Platelet4000 profile image
Platelet4000
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21 Replies
mun13 profile image
mun13

Yes

Platelet4000 profile image
Platelet4000 in reply to mun13

oh good do u hve itp??

mun13 profile image
mun13 in reply to Platelet4000

Knows someone who has. Share your details thro mail to exchange required details.

jangirdinesh profile image
jangirdinesh

myself from Rajasthan my wife have ITP since 2012

Platelet4000 profile image
Platelet4000 in reply to jangirdinesh

wat is her treatment?

jangirdinesh profile image
jangirdinesh in reply to Platelet4000

last Apr 2017 we got treatment dr. given Eltrombopag 50mg. Plt count goes up from 40K to 153K in 1st dose but after 2 week it was 80K with LFT deranged. So dose reduced to 25mg.

LFT ok but plt. count again 10K. and she was pregnant dr. stoped Eltrombopag and given prednisolone 100 mg par day but count remain 10K.

dr. stoped all medicine and plt count was 10K in 1st Trimester. Again Dr. given Retuximab 100mg weekly ( on our Risk) for 4 week during 2nd Trimester count goes up 35k but back to 10K. Dr. Stop all again and leave every on god and my wife blessed with a Healthy cute baby boy on 16 Apr 18. During Delivery 2 unit plt transfusion done and Delivery was normal. Thank God all was normal.

count was 100K after delivery but after 2 week same 10K. again Eltrombopag 50mg Started but my wife stoped every thing only during her periods she take 2 days Eltrombopag 50mg and then Tranexamic Acid 500mg for 3 days. Every thing is normal in life but CBC not checked after may 18. Again planing to go for review lets see....

sreema profile image
sreema in reply to jangirdinesh

Hi,

I m seema from Bangalore. I have ITP from past 16 yrs.

I m planning to take rituximab treatment for ITP.could you please let me know how was the experience on Rituxan.did ur wife's count increase.what is the current count now.

Thanks

Platelet4000 profile image
Platelet4000 in reply to sreema

hw r u balancing life since dis many years??do u have kids ? r dey healthy?

jangirdinesh profile image
jangirdinesh in reply to Platelet4000

Ivig also given in dec 17 but effective only for 2 week. again IVIG given during Delivery time

jangirdinesh profile image
jangirdinesh

Anyone Taken treatment from there in your knowledge ???? How they treat OPD or Hospitalised or frequence of visits required etc.

Asimkumar profile image
Asimkumar

Bangalore, if it helps

Platelet4000 profile image
Platelet4000 in reply to Asimkumar

wat is ur diagonsis?

Asimkumar profile image
Asimkumar

Chronic ITP since june18

Asimkumar profile image
Asimkumar

I am on RECOLADE 25MG 1 TAB EVERYDAY MORNING

Platelet4000 profile image
Platelet4000 in reply to Asimkumar

R u still on revolade?

Asimkumar profile image
Asimkumar in reply to Platelet4000

No Revolade thankfully since June19

Platelet4000 profile image
Platelet4000 in reply to Asimkumar

Wat is ur coiunt now?

How long did u take?

R u taking anythin else now?

Asimkumar profile image
Asimkumar

Platelets count was 65k as of 14dec18

Also on omnacortil 5mg (steroid) once every alternate day..Which will stop within 3days.also on dapsone 100mg daily.

What about u?

Asimkumar profile image
Asimkumar

Revolade 25mg and NOT RECOLADE

Platelet4000 profile image
Platelet4000

Danogen 100mg once daily gaining lot of weight becz of danogen which is also known as danazol

Platelet4000 profile image
Platelet4000

was 70 k last month 14th nov 2018

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