5 yr old daughter

[lrivera1]

My 5 year old has had Itp for the past year, the doctors have just started her on promactra. What is everyone's experience who are or have been on this medication.

[sharroN42]

My thoughts and best wishes are with you and your wee one. Bless you.

[lrivera1 in reply to sharroN42]

Thanks god bless you as well

[prudencepayes]

Hi Irevera1

First of all I must say how sorry I am that you have had this worry for the past year. It brings so much stress and uncertainty.

On the positive side I can tell you that I've been taking this drug (called Revolade in the UK) since June this year and it has been absolutelly marvellous for me. I had tried many other treatments before it and this is the only one that has worked. Within 2 weeks of starting the drug my platelet count had risen to a very safe level and has stayed there ever since. The dose has been adjusted downwards and I'm still fine. I've had no side effects that I am aware of. You do have to be careful about the foods you eat for 4 hours either side of taking the tablet but with such a young child you might be able to wake her before you go to bed and give it to her then perhaps. I'm sure you'll find a routine that works for you.

I very much hope that your little one has a similar experience.

[2sweetkids]

Hiya irivera, where in the world are you? Is this a steroid treatment? My 7 year old boy has had Itp for approx 1yr and 6mths. It has been a roller coaster ride for us as he is a very active little boy and I am on my own with him. Luckily his school have been very supportive. He has had about 4 treatments of immunoglobulin at various points for bad nose bleeds etc. He once had a 4 day high dose course of steroids which seemed to raise the platlets for a couple of days then they plummeted. I did not like these as he was left with joint pain. Please keep in touch and let me know how your daughter is xx

[lrivera1 in reply to 2sweetkids]

Hey my friend we are in Orange County California promactra is a new pill to raise platelets we just started so I will let you know in about 1 week how it's going her first blood test is next week.

[2sweetkids]

Hi, goodness me we are in the north east of Scotland uk.. No wonder I haven't heard of these tablets yet. Yes do keep me posted xxx all the best xx

[lrivera1 in reply to 2sweetkids]

Revolade I believe it's what the name of it is in the U.K.