THIS IS YOUR CHANCE TO HAVE YOUR SAY FOR RESEARCH - The Survey is Now LIVE

[AnthonyHeard]

On the 24th April, in conjunction with The Haemophilia Society, the James Lind Alliance and a select group of health professionals, we are launching a national appeal for patients with bleeding disorders to participate in a web based survey. This will comprise the submission of subjects they, the patients, consider important for research and in relation to their specific condition.

The top ten questions will be submitted to the NIHR for their consideration for funding and subsequent research. Those not making the top ten, will then be considered for submission to pharmaceutical companies. Every submission is important.

This survey is open to all patients, carers, parents, clinicians and youngsters over the age of 8.

The bleeding disorders survey is now live.

We now need your input

If you would like further information on the survey or would like to participate and help research into bleeding relative to

ITP

Log onto :

stopthebleeding.org.uk

and submit what in your opinion needs research.

[AnthonyHeard Administrator ITP Support Association]

I completed the survey myself and it took about 5 minutes. Please do take part, it is really important that we raise the research issues that we feel are important. If we don't express what is important to us then we definitely won't get it researched.

[Itp1987 in reply to AnthonyHeard]

Thank you! All done.

[scaryteacher]

Done.