Itching: Have been diagnosed with itp... - ITP Support Assoc...

ITP Support Association

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Itching

stephie4 profile image
18 Replies

Have been diagnosed with itp for the last 3 or so yrs, what do we do when the itching gets really bad? It's driving me nuts thanks.

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stephie4 profile image
stephie4
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18 Replies
AWSAR profile image
AWSAR

Same with me. i have been diagnosed with itp since july 2016, Now itching is uncontrollable

anyone else having this problem?

any remedy for this?

thanks

tgk62 profile image
tgk62

What kind of itching are you talking about? After being diagnosed I started getting a rash on my arm that had a hematoma, which seems to flare up from time to time, but that's it. Have you tried Benadryl?

AWSAR profile image
AWSAR in reply to tgk62

its like itching on neck, legs. arms. It was never before during medicine . But now im experiencing this . Might be this reaction of medicine i took. secondly i got acne . in forehead. shoulder. neck. n plus itching.. what is benadryl?

technogeek profile image
technogeek in reply to AWSAR

Yes I have had itching even before I was diagnosed with ITP. And since my recent Rituxan treatment, it has gotten almost unbearable. I get it all over my back, my sides, my lower legs and forearms. A hot shower helps as well as scratching. Doctors ignore me when I mention it. I have theorized it is autoimmune result of psoriasis or something else but don't yet know. Liver test sounds like a good plan.

Lynney11 profile image
Lynney11

I have been diagnosed since 2009, but have never experienced any itching. This is a new one on me!

22-patience profile image
22-patience

I have had ITP since 2007 but have never had itching. Could your itching be an allergic reaction to a medication you have been prescribed because of your ITP?

ellaco profile image
ellaco

Hi I have problems with itching, it felt like ants running under the skin. I spoke with my Heamalogy team and I was tested for a liver condition ( autoimmune also) I was diagnosed with it and put on medication for it and within days the itching had Almost completely stopped. I have flare ups.

AWSAR profile image
AWSAR in reply to ellaco

yeah. same like my ants running under skin. which medicine u took for itching

?

ellaco profile image
ellaco in reply to AWSAR

Hi I was prescribed Ursodeoxcholic acid . I was also referred to a liver specialist too.

AWSAR profile image
AWSAR in reply to ellaco

u take liver test? LFT ALT?

ellaco profile image
ellaco in reply to AWSAR

Yes and bilirubin.

stephie4 profile image
stephie4 in reply to ellaco

Oh ok thanks I'll speak to my consultant. Thanks for info

Pollyangel profile image
Pollyangel

Hi

I take Revolade for my ITP... one of it's side effects is itchy skin... could it be your medication?

It could be hormonal too... menopause can cause the skin to be very itchy too...

I am very fair skinned... which seems to make me sensitive to just about everything... my doctor recommended taking an antihistamine daily... and I've done that for years...

I would get it checked out x

stephie4 profile image
stephie4 in reply to Pollyangel

Thanks not menopausal been through it and out the other side. But will speak to consultant thanks

JasonJ profile image
JasonJ

When my count dipped low recently I had itchy shins and ankles.

ep36 profile image
ep36

Mixing sodium bicarbonate and water and applying on itchy areas can be very helpful at times. Same with vinegar water. Either apply it on skin, and you can drink it before meals as well (one teaspoon vinegar in one glass water). Helps the liver in doing its proper job in digestion and detox, which then leads to less skin problems. People have found considerable relief with these two. They are both natural so no side effects.

AWSAR profile image
AWSAR in reply to ep36

thanks

Rikk68 profile image
Rikk68

Try a antihistamine tabs hay fever that should stop it

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