I found a post from 4 years ago that somebody (eagle2) asked if there is a database of ITP patients and the treatments they underwent. Can somebody tell me if something like that exist?
ITP database: I found a post from... - ITP Support Assoc...
ITP database
Written by
edim
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There is but not for general circulation as I understand it. There are two registries of ITP patients (one adult and one paediatric) used for research purposes, both of which are sponsored and funded largely by the ITP Support Association with two of the major Hospitals. I suggest you contact the ITP Support Association for further information.
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