Ivig: So I had my last IVIG on sept... - ITP Support Assoc...

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Ivig

Whitespot profile image
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So I had my last IVIG on sept.25th. 2 days prior to that I started on 30 mg prednisone. I'm slowly weening off. My count went up to 125 then slowly decreased. As of October 6 I was down to 10 mg pred. My count went down to 17. I go for blood tests weekly. My next count was 21 then 57. Still on 10 mg of pred . Was suppose to go for IVIG yesterday but they said I didn't need to, maybe things are looking up.

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Whitespot
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Nespinoza profile image
Nespinoza

I'm shocked you didn't need that second ivig especially with those numbers my hemp usually likes for me to be in the high 100,000 but every hemo is different but I remember I was like that too weekly labs the up and down roller coaster platlets... steroids are no good glad to hear that your hemo is decreasing your steriods

Whitespot profile image
Whitespot in reply to Nespinoza

So far no much luck getting my numbers to stay in the 100,000. My hemp would be happy if they stay in high twenties.

Nespinoza profile image
Nespinoza in reply to Whitespot

O wow but how do u feel?

Whitespot profile image
Whitespot

I feel ok, the worst is the prednisone. Tired sometimes.

lc12345 profile image
lc12345

I've noticed that my platelets never recover smoothly and always fall after first raise before stabilising. Hope yours will increase further

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