Hi to all , My wife diagnosed in Marc... - ITP Support Assoc...

ITP Support Association

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Hi to all , My wife diagnosed in March 2014 with ITP , since then she had two times bleeding , and her counts are fluctuating , help her .

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seeking advice

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alto2005
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Larkspun profile image
Larkspun

Hi:

Is she on medication? How is she feeling? I would like to mention that {no medication} my choice - I decided to do positive thinking and healthy diet. What works for me - I juice one pineapple a day - my platelet count - stable. Also, Vitamin C. I have been doing this procedure for 12 years.

yogesh_c profile image
yogesh_c

Sorry to hear that but what treatment has she hsd taken as of now because there are multiple treatment for this like Anti-D antibody (WinRho), Gamma Globulin (IVIg, IgG), Rituxan (Rituximab), Danazol (Danocrine), Vinca Alkaloids (Vincristine), Protein A Column (Prosorba A), Azathioprine (Imuran), Cyclophosphomide (Cytoxan), and Cyclosporine (Sandimmune). There are also seberal new treatments that boost platelet production called TPO's, NPlate (Romiplostim) and Promacta (Eltrombopag). Of these treatments, some can cause partial or complete remission and some are maintenance therapies. You can find treatment information at

pdsa.org/treatments/convent...

These treatments have different results on different people. If one of not working switch on another one but in discussion with her hematologist.

Morgan profile image
Morgan

If she has been formally diagnosed by hospital tests then she will be receiving the correct help from the professionals, we can only advise of our experiences. I have had ITP for over 10 years, blood counts go up and down continually but luckily I need no medication and have minor bleeding and have hospital checks 3 monthly. Hope your wife gets the appropriate help soon,