ITP Support Association

Connect with ITP Support and people and volunteers affected by or working in ITP

  • Answers to health questions from other patients
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  • Tools to help you make choices that are right for you

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Latest activity

  • 2 hours ago
    https://www.facebook.com/groups/ITPANDME/?ref=ts&fref=ts https://www.facebook.com/groups/10663516172/?fref=ts https://www.facebook.com/groups/itpfoundation/?fref=ts you may have to ask to join some groups I am on all of these
  • 8 hours ago
    Thanks everyone I will be reading all the new threads on this site from now on. Il keep you all updated if there is anything new i can contribute with! I am sure there isnt but at least I have better knowledge with which to confront my doctor
  • 8 hours ago
    just been reading your links, tks! facebook i can only find one page, the rest of them arent updated at all
  • 8 hours ago
    thanks cjoh: I live in a small place! there is one hospital and only three hematologists and they treat all types of blood problems! So sorry to hear about your daughter it must be very stressful for you both. It looks like the younger the ...
  • 9 hours ago
    Thanks Nicky: Removing the spleen is whats worrying me, im sure they will recommend it but like you there seem to be plenty of people where it simply does not work. By what i am reading here there really isnt anything that does work 100% its a ...
  • 9 hours ago
    sorry! Im 50! diagnosed same month as my birthday! lovely present plenty bruising and hemorrhaging! never did pay attention to my health. yes i dont want to take my spleen out so as to have to live with antibiotics. thanks for your suggestions ...
  • 13 hours ago
    Hi , I am from Dublin 13 yo daughter attending Temple Street developed ITP after getting the Gardasil innoculation. She has had IGIV , steriods , but so far only worked temporarily. Drs in Temple Street very good
  • a day ago
    Find a hematologist that specializes in itp. Find the Itp foundation online. And on this site put in itp and that will get you in touch with others with itp. My daughter was diagnosed about 8 months ago and her life has changed dramatically. She ...
  • 2 days ago
    Hi JoaoP I can remember when I was diagnosed with ITP in December 1997. It was the 18th December and I had just been to the gym for an hours work out. I was told I had ITP and I expected to be given some pills to take and then get on with my ...
  • 2 days ago
    http://www.pdsa.org/ http://www.itpsupport.org.uk/ please do some reading these sites are very informative.If you look in the right places all the info re treatments and support for both you and your team are available there are also many ...
  • 2 days ago
    you don't say how old you are? I had ITP in 2004 at age 52 had my spleen out when Prendislone did not work in 2004 since then they have a few more drugs out. I was in remission for 9 years came back in 2013 I was again on prendslone and then on a ...
  • 2 days ago
    Hi, Morgan...thank you for your post.. I have read about sticky blood. There is a supplement called Nattokinase that I bought today that mentions sticky blood ...also Biorutin, collagen and a few other's that were recommended. I have lost weight...
  • 2 days ago
    Hi Pilily...thank you ! I thought it was neuropathy but after remembering my mother I started to figure out that it must be bad circulation...I guess I will go to a vascular dr. I hope you have your's checked out as well..it is kinda scary as we...
  • 2 days ago
    Hello you really sound poorly, I'm sorry to hear that. I was diagnosed with itp about 10 years ago but recently with sticky blood so although thin it is sticky so I could in theory have a stroke/thrombosis, hence I am on a low dose of asperin. I...
  • 2 days ago
    Gosh, I wish I could help you. I am a 58 year old female. I have thrombrocytopenia and anemia. I just read there are over 400 causes for thrombrocytopenia. Last week my platelets were at 10,000 and I get a numbness in both wrists and hands and ...
  • 2 days ago
    Hi everyone, have been in hospital taking immunoglobulin and intravenous cortisone as my count was pretty low and doctor was worried about hemorrhage. really helped and I felt sooo well and alive after that. now I am at home taking cortisone. ...
  • 3 days ago
    It certainly did not help me. I think there is about a 60 per cent chance of success with that surgery. It does present new problems for your immune system without your spleen. I took the chance hoping mine would be a success story but it didn't...
  • 3 days ago
    Hi, I have been diagnosed with ITP, Von Willebrands, non hodgkin's lymphoma ...all in remission (I think) and am wondering if the numbness and lack of feeling in my legs and feet are related..I inherited these blood conditions from my mother......
  • 4 days ago
    Hi Cjoh, Doctors are fixated with platelet counts rather than on the symptoms of ITP. In the US they tend to be more ready to use a treatment that is now 100 years old than we are in the UK. At best splenectomy gives a remission in about 66per ...
  • 4 days ago
    Hi, My wife had done Splenectomy in 2011 and was normal after that. She delivered about a month ago and the count is around 4000. IVIG was given during her 1st month of pregnancy and was not much helpful. She was on steroids for the past 10 Months...

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