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My SCT journey continues
Hi all, not posted for a while but I am now at day+33 and finally starting to feel a bit normal again. I had very bad mucositis following sct and then problems with fluid retention due to all the IVs, mainly tpn as the ng feeding tube didn't stay in. Anyway looks like I'm going home on Friday so that's
Hi all, not posted for a while but I am now at day+33 and finally starting to feel a bit normal again. I had very bad mucositis following sct and then problems with fluid retention due to all the IVs, mainly tpn as the ng feeding tube didn't stay in. Anyway looks like I'm going home on Friday so that's
Flyingsteamer
in
MPN Voice
2 days ago
does anyone out there have histamine intolerance?
hi I’ve just changed from hydroxicarbamide to interferon. Seems ok, fingers crossed, but I also have histamine intolerance amd the absence of Hydroxicarbamide seems to be allowing my mast cells to have a high old time churning out histamine. Has anyone else experienced this? Louise
hi I’ve just changed from hydroxicarbamide to interferon. Seems ok, fingers crossed, but I also have histamine intolerance amd the absence of Hydroxicarbamide seems to be allowing my mast cells to have a high old time churning out histamine. Has anyone else experienced this? Louise
Loubprv
Volunteer
in
MPN Voice
3 days ago
Help with results!
Hi everyone! Hoping that I can get some advice here. I was diagnosed 3 years ago with endo via laparoscopy. Most of the endo was found on my pouch of douglas and ureteral sacral ligaments. Unfortunately the operation wasn’t done by an endo specialist! I recently got referred to an endo centre as
Hi everyone! Hoping that I can get some advice here. I was diagnosed 3 years ago with endo via laparoscopy. Most of the endo was found on my pouch of douglas and ureteral sacral ligaments. Unfortunately the operation wasn’t done by an endo specialist! I recently got referred to an endo centre as
LJC1416
in
Endometriosis UK
3 days ago
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Lansoprazole /Prolia
In my Sunday newspaper today the usual GP column has a question put to the GP about Lansoprazole use. Following a mini stroke this lady was put on various tablets one of which was Lansoprazole, and she developed pains in her legs and hips, had a scan and was told she had early-stage osteoporosis. She
In my Sunday newspaper today the usual GP column has a question put to the GP about Lansoprazole use. Following a mini stroke this lady was put on various tablets one of which was Lansoprazole, and she developed pains in her legs and hips, had a scan and was told she had early-stage osteoporosis. She
Purplegloss
in
PMRGCAuk
4 days ago
Bowel inflammation trigger
Has anyone had their endo trigger with unbelievable pain when you have Diarrhoea? The pain was so bad I have been vomiting all night and I've now come out in hives.
Has anyone had their endo trigger with unbelievable pain when you have Diarrhoea? The pain was so bad I have been vomiting all night and I've now come out in hives.
Theodora2016
in
Endometriosis UK
5 days ago
groin pain with IBs
hello does anyone else experience left sided groin pain with their IBS? constipation mainly also get sciatica symptoms with the groin pain when get an attack. Pain also left side of belly button starts here then get the groin pain a few days later like a horrid stitch Makes me feel really anxious
hello does anyone else experience left sided groin pain with their IBS? constipation mainly also get sciatica symptoms with the groin pain when get an attack. Pain also left side of belly button starts here then get the groin pain a few days later like a horrid stitch Makes me feel really anxious
TINKER23
in
IBS Network
6 days ago
Question about Celiac or NCGS...
I am wondering if anyone with NCGS gets neurological symptoms? I am also wondering about Celiac; if you test negative - does that mean you definitely are not Celiac? Last tests I got was when I was off gluten - blood and endoscope. So found nothing... Took a private finger prick one the other day, awaiting
I am wondering if anyone with NCGS gets neurological symptoms? I am also wondering about Celiac; if you test negative - does that mean you definitely are not Celiac? Last tests I got was when I was off gluten - blood and endoscope. So found nothing... Took a private finger prick one the other day, awaiting
Suffering_sunny
in
Gluten Free Guerrillas
6 days ago
Alendronic Acid
Been on A A for just over a year for improving bone met, now recently found that effects of acid and build up are giving me gas and stomach reactions that bowel are very loose others found this problem been Dr and oncology over matter
Been on A A for just over a year for improving bone met, now recently found that effects of acid and build up are giving me gas and stomach reactions that bowel are very loose others found this problem been Dr and oncology over matter
Chrisbaird
in
Advanced Prostate Cancer
6 days ago
hypothyroidism and stomach ulcers
I've just been diagnosed with stomach ulcers. They've sent a prescription through for a heavy dose of Proton pump inhibitors. But I have questions. For example, how do they know its excess stomach acid causing the ulcers? I thought or perhaps read somewhere that when you're hypothyroid (even if euthyroid
I've just been diagnosed with stomach ulcers. They've sent a prescription through for a heavy dose of Proton pump inhibitors. But I have questions. For example, how do they know its excess stomach acid causing the ulcers? I thought or perhaps read somewhere that when you're hypothyroid (even if euthyroid
ShatteredofLee
in
Thyroid UK
6 days ago
Stomach issues
Morning all, So I am just about at my wits end with chronic gastric reflux and chronic wind up and down without much smell. Sometimes I vomit with it, and now I can only eat jasmine rice and even struggle to get water down at the moment. My stomach feels like I have been beat up from the inside
Morning all, So I am just about at my wits end with chronic gastric reflux and chronic wind up and down without much smell. Sometimes I vomit with it, and now I can only eat jasmine rice and even struggle to get water down at the moment. My stomach feels like I have been beat up from the inside
M0wnt
in
LUPUS UK
6 days ago
Bad dumping incident?
Hi there. Just thought I’d reach out to see if anyone can relate to my situation. I’m over 5 months from three way Oesophageal Surgery. I was doing really well with eating and fitness levels. Then last Friday (after a Chinese takeaway which didn’t consist of more than some noodles and a bit of chicken
Hi there. Just thought I’d reach out to see if anyone can relate to my situation. I’m over 5 months from three way Oesophageal Surgery. I was doing really well with eating and fitness levels. Then last Friday (after a Chinese takeaway which didn’t consist of more than some noodles and a bit of chicken
Julieanne60
in
Oesophageal & Gastric Cancer
8 days ago
still having symptoms
Hi I posted a while ago about my son who is 23 had a fit positive test off 200 and loose bowel movements up to 6 times a day.He had a colonoscopy, it was clear, biopsies was clear too so they discharged him. He is still having symptoms and lots of blood , he also keeps getting really big ulcers in
Hi I posted a while ago about my son who is 23 had a fit positive test off 200 and loose bowel movements up to 6 times a day.He had a colonoscopy, it was clear, biopsies was clear too so they discharged him. He is still having symptoms and lots of blood , he also keeps getting really big ulcers in
Longboots7979
in
Colon Cancer Connected
8 days ago
15-Year-Old daughter level 3700+
Hi there if anyone here has gotten any answers my daughter is 15 years old has been through an endoscopy colonoscopy endless blood tests And scans And we are getting absolutely nowhere the doctors are stumped the most we're getting is she has some sort of inflammation most likely being caused by a form
Hi there if anyone here has gotten any answers my daughter is 15 years old has been through an endoscopy colonoscopy endless blood tests And scans And we are getting absolutely nowhere the doctors are stumped the most we're getting is she has some sort of inflammation most likely being caused by a form
Eric_Cartman
in
Crohn's and Colitis Support
8 days ago
GP visit!
So I went to see my GP yesterday and discussed my symptoms, and asked about B12 injections. Got the same old story - test within range, symptoms aren’t bad enough, try oral B12 for three months, despite my explaining that I have low stomach acid and problems with malabsorption, which she again dismissed
So I went to see my GP yesterday and discussed my symptoms, and asked about B12 injections. Got the same old story - test within range, symptoms aren’t bad enough, try oral B12 for three months, despite my explaining that I have low stomach acid and problems with malabsorption, which she again dismissed
Chickens44
in
Pernicious Anaemia Society
9 days ago
Are endocrinologists of any help after ADT?
After ADT, my MO told me that handling things like Prolia management won't be in her bailiwick. I didn't ask about post-ADT SE's and recovery from same. Hot flashes, low T, BMD loss, and last not least sarcopenia. What is the community's experience with how post-treatment SE's are best handled? Are
After ADT, my MO told me that handling things like Prolia management won't be in her bailiwick. I didn't ask about post-ADT SE's and recovery from same. Hot flashes, low T, BMD loss, and last not least sarcopenia. What is the community's experience with how post-treatment SE's are best handled? Are
Derf4223
in
Advanced Prostate Cancer
9 days ago
Swollen hand
swollen painful hand ( just the one thank goodness) any connection with steroid reduction? Any thoughts? Doctor eliminated carpel tunnel, being sent for blood test for rheumatoid arthritis but I have noticed it is worse when I have just reduced by 1mg my dose of prednisolone which I take for PMR. It
swollen painful hand ( just the one thank goodness) any connection with steroid reduction? Any thoughts? Doctor eliminated carpel tunnel, being sent for blood test for rheumatoid arthritis but I have noticed it is worse when I have just reduced by 1mg my dose of prednisolone which I take for PMR. It
peggy1920
in
PMRGCAuk
9 days ago
diarrhoea and constipation
I’ve had ibs since in my thirties now 69.I had a flare up Friday ,terrible pains but had job to go to loo.The next day my stools were lose,and I began to feel better yesterday had a job to go again.even though I fell like I want to go today,can’t .I go most days .Pains have come back,which is relieved
I’ve had ibs since in my thirties now 69.I had a flare up Friday ,terrible pains but had job to go to loo.The next day my stools were lose,and I began to feel better yesterday had a job to go again.even though I fell like I want to go today,can’t .I go most days .Pains have come back,which is relieved
mousey1
in
IBS Network
10 days ago
Cirrhosis & Diverticular disease
I was recently diagnosed with Diverticular disease and Cirrhosis of the liver, after having a Scan and colonoscopy. I was referred to the Gastroenterlogy department at the hospital for triaging and consultation with regard to the cirrhosis, but it looks as if both of those will take months to happen.
I was recently diagnosed with Diverticular disease and Cirrhosis of the liver, after having a Scan and colonoscopy. I was referred to the Gastroenterlogy department at the hospital for triaging and consultation with regard to the cirrhosis, but it looks as if both of those will take months to happen.
onefiveone
in
British Liver Trust
12 days ago
colonoscopy 💩
I’m due to have a colonoscopy on the 16th which I am not looking forward to as when I had a sigmoidoscopy years ago I was in considerable pain when they used the air. I believe my bowel prep is going to be Picolax any tips on getting it down? I get bad reflux and nausea so praying it’s not going to make
I’m due to have a colonoscopy on the 16th which I am not looking forward to as when I had a sigmoidoscopy years ago I was in considerable pain when they used the air. I believe my bowel prep is going to be Picolax any tips on getting it down? I get bad reflux and nausea so praying it’s not going to make
BasilG
in
IBS Network
12 days ago
Stomach pain common with IBS?
Is stomach pain common with IBS?If so, where do you feel the pain? I feel pain right in the center pit of my stomach... sometimes gnawing sensation, sometimes a cramping sensation Do you feel it there in the center pit of your stomach too?
Is stomach pain common with IBS?If so, where do you feel the pain? I feel pain right in the center pit of my stomach... sometimes gnawing sensation, sometimes a cramping sensation Do you feel it there in the center pit of your stomach too?
Catsandsunsets
in
IBS Network
14 days ago
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