Worrisome info about vaccines
This is specific to NEuromyelitis Optica but the overlap with MS and the odd fact that immunosuppressive DMTs are protective makes me want to...
My doctor changed his mind and decided to put me on Azathioprine instead of Humira-at least for the time being-while continuing with Uceris (...
I would be really like to hear from you if you have tried it, and if you experienced any side effects and of course, benefits, in the treatme...
Levothyroxine therapy and impaired clearance are the strongest contributors to small intestinal bacterial overgrowth
Multivariate analysis revealed gastric surgery, stenoses, medical immunosuppression and levothyroxine to be the strongest predictors. [/i ] [...
Ibrutinib and Shingrix issues
I have had shingles once in the past and it was very painful I have been on Ibrutinib for 4 months and am doing well, now that my out of cont...
Has anyone been prescribed mycophenolate to treat the symptoms of their ataxia? I go to see Professor Hadjivassiliou in Sheffield and he sugg...
A Quick Question About Immunosuppressants and Exposure to Chickenpox.
Hi All. So......
Hi All, I am starting azathioprine on Thursday and have been suspended from work while I am on them as they are immunosuppressants and I work...
Hello.... waves from the sidelines 👋👋👋👋 I have missed you all so much.
Before the op I had told myself I would like to be walking 2km by the end of week 2. I am sure I will be not going for a PB, but you just hav...
Underlying Autoimmune Condition? Immunosuppressed, on Immunosuppressants / Chemotherapy? Avoid Contact With Recipients of Nasal Flu Vaccine.
Hi All Not quite on topic but perhaps relevant to those who may have additional autoimmune conditions or other health issues, so here goes......
10 Weeks post Transplant
Hi all, an update as promised and oh what a rollercoaster its been. Firstly, roughly day 20 after feeling absolutely fine I got a phone call ...
20 Days post transplant
No itch is the biggest thing to get my head around, its amazing but still worried every time I get the slightest odd feeling but then realise...
I have SLE ,SS, Hypo thyroid and Myeloma Cancer all diagnosed August 2015 - my question is those with lupus and /or Sjorgrens do you all take...
Increasing Urine Protein Crea Ratio - Anyone has been through this?
At the mean time he mentioned that my Creatinine readings ( see the one labelled ' Creatinine ' indicate that my kidney is still functioning ...
Homozygous Familial Hypercholesterolemia
Hello All My nephew was diagnosed with HoFH a few years back. He is 6 years of age....
Has anyone with Rheumatoid wrists had carpal tunnel surgery ? and did it help?....
Yoga has helped my mobility and muscular pain
I have tried everything under the sun to ease my pain over the last 7 years. After ending up in hospital with pneumonia last year after start...
ITP with counts less than 10, is revolade is dangerous?
Hello everyone Im 28 years old n diagnose ITP after dental surgery.. When i had my first cbc after dental surgery count was 2....
Exposure to Chickenpox
I know this subject has been discussed a number of times in the past, although there appears to be no official guidance on the Vasculitis UK ...
MTX and Infections
As you can imagine, I’m feeling quite sorry for myself and wondering whether it’s worth being on MTX if this is what it’s going to be like, c...
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