JL1w in LUPUS UK 8 months ago
Hi all I hope you can help ! I have SLE ,SS, Hypo thyroid and Myeloma Cancer all diagnosed August 2015 - my question is those with lupus and...
amandajane76 in LUPUS UK 3 years ago
My rheumy has mentioned immunosuppressants.imuran was one and methotrexate was the other.could anyone give me an idea of that these are like...
jnhmorris in Kidney Transplant a month ago
New to the site....9 years post transplant. If you have not done so already, please have a discussion with your transplant team re the affec...
poodlegal in LUPUS UK 3 years ago
Hi all just laid here thinking and thought I'd ask, been on immunosuppressants for 4 years due to stage 4 nephritis and neutropenia due to l...
DH65 in MPN Voice 4 months ago
Hi Everyone, after a mild first time shingles outbreak my dentist is hoping I'm not immunosuppressed. I'm ET jak2+ on HU 500 mg 3x wk
Antibiotics & immunosuppression
Clareb67 in LUPUS UK 2 years ago
Hi. I am currently on a hefty dose of Klaricid for a deep infection to my foot but don't know whether I should discontinue the Mycophenolate...
Immunosuppression and antibiotics
kered in ITP Support Association 3 years ago
Should ITP patients who are on long term treatment with immunosuppressants such as MMF carry a supply of antibiotics with them for potential...
Still no immunosuppressant
Goldyukr in Myositis UK 5 months ago
Hello all. Looking to hear from your experience. I have myositis (still haven't told me exactly what kind but seems to me to be polymyositis...
Zika and immunosuppression
Purpletop in LUPUS UK 10 months ago
Hiya, a quick question about travelling to Zika-prone countries.
Have you been to one and if so, did you take any extra precautions about mo...
Heights69 in LUPUS UK 2 years ago
Hi all, I got the great news today that as I am in remission I can start reducing my dose of MMF after 2 years of taking it. I wondered if a...
Immunosuppressant's with Rituximab
Maudy1 in Vasculitis UK 3 years ago
I am on my 2nd round of Rituximab and am having to consider another immunosuppressant along side it, as I still do not feel well and my symp...
Flare on immunosuppressant
poodlegal in LUPUS UK a year ago
When u flare but are on immunosuppressants does that mean they are not wrking ??
My dr just said something like that but only just thought o...
witchiegirl in British Liver Trust 4 years ago
Just trying to get an idea what may be next for me. I have sort of AIH/PBC overlap, well autoimmune cholangiopathy to be precise, diagnosed...
Fluid retention and immunosuppressant drugs
findasolution in British Liver Trust 5 years ago
There have been several past postings relating to ascites and oedema flowing from liver disease and particularly cirrhosis but I am inquirin...
Is anybody with only APS on immunosuppressants?
Calico in Sticky Blood-Hughes Syndrome Support 5 years ago
I mentioned to my neurologist but she declined saying not necessary for Primary APS even though I continue to be symptomatic after high anti...
Shingles vaccine or not with immunosuppressant
Jomo46 in British Lung Foundation a month ago
I have chronic sarcoidosis in the lungs and am permanently breathless if I move around. I take prednisone and mycophenalate. The mycophenal...
Prednisone and immunosuppressants side effects
Lara1 in Behcet's Syndrome Society 4 years ago
New development in my case - no lesion on my spine MRI which is making the multiple sclerosis diagnosis less probable. Next week I am ...
Steroid versus immunosuppressant
Biddyb in PBC Foundation 7 months ago
I was diagnosed with PBC around 2006. And put on URSO, about 4 years ago my specialist thought that I had AIH overlap and put me on predniso...
Immunosuppressants - Ciclosporin and Azathioprine
Hidden in Asthma UK community forum 7 years ago
I was just wondering if anyone has experience of these two immunosuppressants being used in combination?
I have been on Ciclosporin since Ju...
Shingles when you're immunosuppressed
cathie in NRAS 3 years ago
Of course its easy not to understand what is happening when you have a number of different ailments and sensitivities. So when I developed a...
Consequences of stopping the immunosuppressants?
Ayla in Vasculitis UK 5 years ago
When I was suffering from a bad dose of campylobacter enteritis recently, my consultant advised me to stop taking mycophenolate mofetil. He...
Immunosuppressed and chicken pox??
yaf_user681_15459 in Asthma UK community forum 4 years ago
Maddie (4yrs) has had chicken pox before when she was 2.
She has been on maintenance pred dose for 2 yrs now and is immunosuppressed. She...
Do immunosuppressants and sushi mix?
wotshernameagain in LUPUS UK 2 years ago
Hey guys a bit if a random question.
Met up with a friend at Yo Sushi and had a lovely catch up which was nice because I don’t get to go out ...
Chickenpox and immunosuppressed people
vivdunstan in Vasculitis UK 6 years ago
If you haven't had chickenpox as a child and catch it later when on immunosuppression drugs this can be a life-threatening situation. Chicke...
Lupus, immunosuppressed and catching lots of viruses
Sarah74 in LUPUS UK 2 years ago
I've had a bit of a tough time since January. I've often caught the odd extra cold than my friends but this year had been ridiculous. I star...
Do Asthma meds make you immunosuppressed??
yaf_user681_15459 in Asthma UK community forum 7 years ago
My little girl is taking Budesonide (pulmicort) 1mg twice daily as well as other things. This is a high dose considering she is only 2 years...
Increase in immunosuppressants having some good results.
Slowmo in LUPUS UK 4 years ago
4-5 weeks ago my rheumy upped the azathioprine to the highest dose I've been on (200mg per day) , slowly but surely I'm able to do more than...
A Quick Question About Immunosuppressants and Exposure to Chickenpox.
Foggyme in LUPUS UK 3 months agoPOPULAR
Hi All. So...as per my just now previous post...I started treatment with immunosuppressants this morning (Azothioprine) and understand that ...
Insomnia and mycophenalate/ immunosuppressants? Anything anyone's had to help?
Melba1 in LUPUS UK 2 months ago
Wondering if anyone is on mycophenalate (cellcept) and has had problems with insomnia from it and if so what helps please?
I'm just uppin...
Other than steroids and hydroxychloroquine, which immunosuppressant treatments do you currently take?
Paul_Howard in LUPUS UK 4 years agoPOPULAR
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