Worrisome info about vaccines
This is specific to NEuromyelitis Optica but the overlap with MS and the odd fact that immunosuppressive DMTs are protective makes me want to...
I would be really like to hear from you if you have tried it, and if you experienced any side effects and of course, benefits, in the treatme...
Ibrutinib and Shingrix issues
I have had shingles once in the past and it was very painful I have been on Ibrutinib for 4 months and am doing well, now that my out of cont...
Has anyone been prescribed mycophenolate to treat the symptoms of their ataxia? I go to see Professor Hadjivassiliou in Sheffield and he sugg...
My doctor changed his mind and decided to put me on Azathioprine instead of Humira-at least for the time being-while continuing with Uceris (...
Hi All, I am starting azathioprine on Thursday and have been suspended from work while I am on them as they are immunosuppressants and I work...
A Quick Question About Immunosuppressants and Exposure to Chickenpox.
Hi All. So......
Underlying Autoimmune Condition? Immunosuppressed, on Immunosuppressants / Chemotherapy? Avoid Contact With Recipients of Nasal Flu Vaccine.
Hi All Not quite on topic but perhaps relevant to those who may have additional autoimmune conditions or other health issues, so here goes......
Levothyroxine therapy and impaired clearance are the strongest contributors to small intestinal bacterial overgrowth
Multivariate analysis revealed gastric surgery, stenoses, medical immunosuppression and levothyroxine to be the strongest predictors. [/i ] [...
MTX and Infections
As you can imagine, I’m feeling quite sorry for myself and wondering whether it’s worth being on MTX if this is what it’s going to be like, c...
Homozygous Familial Hypercholesterolemia
Hello All My nephew was diagnosed with HoFH a few years back. He is 6 years of age....
10 Weeks post Transplant
Hi all, an update as promised and oh what a rollercoaster its been. Firstly, roughly day 20 after feeling absolutely fine I got a phone call ...
Hello.... waves from the sidelines 👋👋👋👋 I have missed you all so much.
Before the op I had told myself I would like to be walking 2km by the end of week 2. I am sure I will be not going for a PB, but you just hav...
20 Days post transplant
No itch is the biggest thing to get my head around, its amazing but still worried every time I get the slightest odd feeling but then realise...
I'd love to hear from those of you who have experience with taking Methotrexate ( MTX ). My Rheumatologist has prescribed MTX for me saying "...
Recently diagnosed with ANCA Vasculitis.
Hi there! I'm new to this forum and on the 20th November I was diagnosed with pr3 small vessel vasculitis ( extra renal syndrome )....
Hi Kidney Patients!
I'm a 56 year-old man arrived at stage 5 due to Polycystic Kidney Disease. I was in denial as my GFR dropped over the years....
He reviewed my blood test results, scans and was very adamant that I have thyroid eye disease ( based on appearance ). My recent blood test r...
Yoga has helped my mobility and muscular pain
I have tried everything under the sun to ease my pain over the last 7 years. After ending up in hospital with pneumonia last year after start...
Increasing Urine Protein Crea Ratio - Anyone has been through this?
At the mean time he mentioned that my Creatinine readings ( see the one labelled ' Creatinine ' indicate that my kidney is still functioning ...
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