New Years Good News
Had the best appointment I've ever had with my CLL expert. Every single blood number is in the normal range, no enlarged lymph nodes, no enla...
CLLSA and Leukaemia Care Joint Response to NHS England regarding Ibrutinib Prescribing as per NICE TA
This is the letter sent to Professor Peter Clarke on 2nd July 2018 for the review of Ibrutinib prescribing. The recent decision by NHSE to re...
MUST READ for those on Ibrutinib/Imbruvica - dangerous advice in pilot study on lower dosing - incl. danger of starting with a lower dose
[ b ]*** DO NOT REDUCE YOUR IBRUTINIB DOSE WITHOUT THE GUIDANCE OF YOUR CLL SPECIALIST ***[/ We have always known that the minimum dose of ib...
Chimeric antigen receptor-modified T cell therapy in chronic lymphocytic leukemia
[ i]Journal of Hematology & Oncology, November 2018[/i ] CAR-T therapy, a promising adoptive T cell immunotherapy, has become more and more i...
need help - Idelalisib
hi there, I'm needing some info and a reality check. I start Idelalisib rituxsan this week....
Ibrutinib linked to invasive fungal infections
In the past Idelalisib ( Zydelig ) was found to increase the risk of Pneumocystis in previously untreated patients. Talk to your CLL speciali...
CLL Treatment Sequencing by Dr. Susan O'Brien
- In June 2018, the FDA granted a standard approval to venetoclax ( Venclexta ) for the treatment of patients with CLL or small lymphocytic l...
Has anyone taken this for Nfl? If so, how is it and how are the side effects?...
Here we go again!
I was 5 years in remission after several chemo regimens, beginning back in 2008. Two years ago I began taking idelalisib as part of a trial....
I've just reviewed treatments and am more confused!
The range of medical opinions and videos, combined with and problems reading long posts at the moment ( various reasons ) are beginning to ca...
I thought I would share: There are several new treatments that are available for the treatment of CLL. Ibrutinib and Idelalisib have been out...
Adding additional chemo
I am being treated for CLL for the second time after being in remission for 9 years......
Idelalisib & 17p deletion
Is anybody else on my " whacky " journey with this most difficult prognosis.. It'd be good to share experiences and thoughts......
Possible side effects from Ibrutinib & Idelalisib
As Ibrutinib and Idelalisib become more widely used among non CLL Specialists I have some concerns that side effects from both drugs may not ...
Idelalisib Trial frozen!
Was starting a trial on Monday with Idelalisib. Today I've been told the trial has been frozen....
Idelalisib & 17p deletion
Some advice needed! I was diagnosed 18months ago at the age of 50 with CLL plus 17p deletion and have been on Idelalisib since last October (...
Dr, Jeff Jones on venetoclax after failing ibrutinib or idelalisib
This week in the Conference Coverage section, we’ve posted an interview with Dr. Jeff Jones from ASH 2015 where we discussed the use of venet...
ASCO 2016: Dr. O'Brien on Idelalisib and liver inflammation
cllsociety.org/2016/09/asco... We’re pleased to announce that we’ve posted a CLL Doctor List in o...
Hi. I have just returned from The Christie, Manchester, with my husband, he has been for his 3 monthly check up....
Idelalisib given front-line for treatment of chronic lymphocytic leukemia causes frequent immune-mediated hepatotoxicity
Key Points Idelalisib as upfront therapy for CLL caused an early hepatotoxicity in a subset of primarily younger patients with IGHV-mutated d...
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