Hello, I’ve stumbled across this amazing site and wanted to connect with fellow Covid family members of those with severe ARDS on ventilators (or those who have have been ventilated for long periods), in what is the most devastating time of my life.
My Dad is on Day 12 now of intubation. He previously did CPAP for a few days and was fighting it at home for 7 days.
He’s been proned whilst ventilated, but complications have included pulmonary embolism, following a CT and it seems like a step forward then a step back. He was otherwise fit and well previously, never been hospitalised before.
He’s on 50-60% oxygen presently, but this has varied. At one point they tried to unparalyze him and put him on auto mode as his CRP was coming down and he was afebrile, but these have creeped back up again, so they’ve increased sedation (and restarted antibiotics).
I wanted to know if any people in the same boat had had any luck with trial drugs- they are only offering corticosteroids at his unit and don’t feel he’s suitable for this anyhow. Are they still proning? It was helping initially, but they decided to stop for whatever reason and explained there are risks in continuing it.
How often are you calling ICU? Do you get to speak to the doctor or nurse much? Any suggestions to stay sane?
We are doing prayers and trying to keep a diary, but every day is a real struggle and as a family we are all recovering from Covid (myself included).