Anoxic brain

[Lifesamystery]

I had a massive heart-attack(2015)& died. Althou CPR& paddles were used my heart wouldn’t stay beating. I too was without oxygen ( time frame not clear ).. among other damages to my body - I have anoxic brain injury. Affecting my frontal lobe - executive function. There is a way to have you’re brain “remapped” .. after they do a verbal/ Nuro. tests/assessment to establish where the damage is.

I was unaware of my deficit. Only when I would get that “look” from someone- “ uh- u just said that or we have already talked about that..

I will tell u this- if I remembered about those conversations etc I wouldn’t ask again. I realize how frustrating it is for u to deal with this. But it is so very difficult for “us” to deal with the reality that our memory is damaged - our minds.. frustrating, depressing & sad! I make bad decisions, say inappropriate things( which has cost me friendships- hard to explain to ppl that I dont realize what I’m saying until I look back on it - then I’m mortified .. no filter..most people do not know or see what’s going on in my mind and I look and act perfectly “normal”..

I have learned how to help myself - I make sure I write important things down, take notes, purposely arrange things to help me remember-

My advice: be kind / gentle when u notice the repetition or memory loss.. nothing is done with the intent to make u frustrated .. believe me- help provide triggers to help him remember - I have learned to say “if I’ve told u this already let me know”..

be open & honest with what you’re observing - if you agree to honesty then he won’t be as embarrassed about what’s happening..it will take some time- but soon you both will find tools that will help you both get thru this

❤️

[HopeforTony]

This stuck with me so much. My fiancé suffered a fall had a seizure and coded in the hospital he too died. They declared him with anoxic with loss of oxygen for ten minutes they told me he’d be vegetative and it was useless but I pressed on. He was in a coma for three weeks and finally came out. He has frontal lobe damage and then had a fib again . It has been so hard but I’ve always told him no matter what I would always take care of him. I am so unsure as to how he will be once he is able to talk but I am trying to have hope I’m so scared I just don’t know what will happen. You have given me some hope and I will always work with him no matter how frustrated I feel. Right now he has a trach so it’s so hard to know what he wants and I feel bad I don’t know anyway thanks so much and I'm sorry what happened to u and I won't take this post for granted. Ty

[Sepsur in reply to HopeforTony]

I came across a brilliant app. trying to communicate with an elderly relative after a stroke. It’s called patient communicator ( it’s a free app from SCCM). Maybe it will help you both

[HopeforTony in reply to Sepsur]

Thanks so much I will download it now