Update, now in rehab, now many questions - ICUsteps

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Update, now in rehab, now many questions

Brittxoxo profile image
7 Replies

5 weeks later here we are and my mother is now in a rehabilitation center. Upmc Mercy here in Pittsburgh. I hear its one of the best. Therapists say she is working hard and since they only have to work with her muscles her recovery may not be that long. Ever since they took the tube out her oxygen has been at 100% (meanwhile they wanted to do a trach) also the delerium part has finally went away. Now that the hard part is over I'm looking back and i really believe a mistake has been made. Shes in a spinal cord injury rehab and people there have been in serious accidents.. Then you go around and ask what happened to my mom and all she can say is she had an asthma attack... How do you go in for an asthma attack and wake up 17 days later with a tube down your throat and not able to move at all? I honestly believe she was over medicated. At one point she was on a paralyzing medication, high dosages of fentanyl and propofol and also versad & lets not forget the 60mg of steriods every 6 hours. I know they were able to control her asthma but my mind still wonders if they did something wrong..

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Brittxoxo
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Brittxoxo profile image
Brittxoxo

Also lets not forget the first night she got admitted i left at 12 am and she was on an hour breathing treatment, then at 2 am i got a call saying she was already in ICU and intubated. All i was ever told was the reason they did what they did was because her airways were tight. No other explanation for anything! Really makes my mind wonder sometimes

GeorgiiiaWood profile image
GeorgiiiaWood

Hello, so sorry to hear this. Very worrying! My nanny is the ICU after having a stent fitted for an aeotic aneurism. Cut a long and traumatic story short,there's a 90% chance she could be paralysed!? She's on that propofol too, so is that a paralysing drug!?

Brittxoxo profile image
Brittxoxo in reply to GeorgiiiaWood

Im sorry to hear about your grandmother. I will be praying for her and you. Ive done research on propofol and apparently that medication is a short term sedative. Why are they saying she may be paralyzed?

GeorgiiiaWood profile image
GeorgiiiaWood in reply to Brittxoxo

Thank you for your prayers, they are much needed and appreciated. We need To do some investigating. The surgeon may or may not have 'nicked' an artery. So, when that happened it would of had to of been clamped off to repair, stopping the blood flow to her legs for a while. She's just gone down for a scan to see if they can see anything they may of missed. (Fingers crossed there's nothing)

Brittxoxo profile image
Brittxoxo in reply to GeorgiiiaWood

Wow! Thats so sad. I really hope nothing is found. I'll be looking out for updates. It's mind blowing how you go into the hospital for one thing, then 10 other things end up happening

Brittxoxo profile image
Brittxoxo

Thank you so much. She was in the induced coma for 17 days. And she was on the paralyzing medication for 5 days. I wish I could remember the dosage. All I remember being told is "she has a high tolerance" and she was on high dosages of everything

Twoblu profile image
Twoblu

I am sorry to hear this.I am wondering what has happened to my brother too. He went in with breathing issue. Was on CPAP. Next day when we went to see him he had been put into an induced coma. Eventually brought out of it. Now unable to move from the neck down.

He can shrug shoulders a bit.

Push against my hand.

Raise fingers slightly.

Cannot lift arms or hands.

He feels pain. He feels everypart of his body.

He cannot sit up or anything. Something is connecting to make his fingers raise slightly when you ask him too.

When i hold his arm and say push. He pushes my hand quite strong. So i we do not get why he has/is not under a neurologist or anyone.

He is in nursing home.

Laying there. Can turn his head from side to side.

His speech is not totally clear.

So what happened ?

They said he had community acquired pneumonia.

So no spinal injury.

No brain injury ?

So how is he like this ?

Surely if there is something there movement wise. Connection wise. Why can he not be given intense physio ot something.

You go in with a breathing issue and come out like this.

24,/7 bedbound. Dependant on 24/7 care.

So what went wrong ?

How can we get second opinion ?

Totally left in limbo.

Nothing makes sense at all.

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