My mum has been taking Methotrexate for the arthritis in her hands and has suddenly developed some kind of Pneumonia. She is now on ecmo system. (replacement lungs) so her lungs can rest and recover from the infection. Has any one else experienced this? She was on the ventilator for 2 days needing 70% and 100% from the machine and the machine was doing damage. She has now been moved over her to another hospital. She has been sedated for 3 days now. They said it will be a minimum of 2 weeks and the guy next to her has been on this machine for 8 weeks.
I have questions about the sedation . Will she have a more peaceful dream experience if i put muffles earplugs in? She wears them at night. The ward is very noisy.
Also, the hospital she has been moved to is 2 hours away. I have a baby so can't visit everyday. Does anyone remember their relatives there. Does it help. If so i am considering renting a flat nearby if i can. In what way does it help. Do we enter the dreams and hallucinations? Im a singer, if I sing softly will that help?
My mum already takes anti anxiety drugs which she has been on for 20 years but is not being given the same ones. Will this effect her in her sleep. She normally wakes up at 5pm everyday (when it is most noisy in hospital now) and goes to sleep at 3am.
I want her to live but i am so worried about her being so uncomfortable and in a night mare not to mention how she will be afterwards to recover. I wonder if she would want all this. As her carer i feel so responsible. Do I actually have any choice if this goes on too long on machine?
I also feel like i need counselling as i feel anxiety for her. I feel my friends and family don't want to hear about this all the time and i don't blame them. I am trying to think positively but i just suddenly feel sick and shaky all the time and start thinking the worst.
So many questions.
It would be great to hear back from someone about any of this.