After one year on Ibrutinib, BEST NEWS EVER!!
My husband has had CLL for over five years now, and was on Wait and Watch for 2 years before everything went really bad: fatigue,fevers, 160,...
Breaking news form ASH conference: looks like Ibrutinib May be better than FCR for some patients
#ASH18 #LBA | A Randomized Phase III Study of Ibrutinib ( PCI-32765)-Based Therapy Vs. Standard Fludarabine, Cyclophosphamide, and Rituximab ...
Ibrutinib and Obinutuzumab with Venetoclax
My husband needs to start first time treatment for CLL as soon as possible. about the clinical trial which adds Venetoclax to Ibrutinib and O...
Potential cure for CLL
They had a 100% response with 30% showing undetectable CLL in six months of treatment. Some are using the word " potential cure ", but as CLL...
Follow ups when on Ibrutinib
What is the follow up regiment when starting Ibrutinib? How to see if any changes in abdominal lymphoma mass?...
Any side effects
Just wondering what side effects anyone on this site have had on: IBRUTINIB ?...
7 month on Ibrutinib
I put of going on Ibrutinib as long as I could, feel much better and glad I finally agreed to go on the drug....
Ibrutinib Venetoax Obinutuzumab cancerfree since January 2018 Going in for checkups every 3 months...
Venetoclax and ibrutinib trial
This is great news but I’m thinking why I should continue taking the medication for another 7/8 month if there is no evidence of CLL....
Hi All ,I’m on ibrutinib and venetoclax and I am having terrible cramp ,has anyone else experienced this ?...
Ibrutinib advice please
As a CLL patient I am now going to start Ibrutinib next week & have been told I will be prescribed Aciclovir as well. Also in my previous que...
ibrutinib, opposite effect.
Our doctor is Dr. James Johnston in Winnipeg, Canada, and he is a CLL specialists and he said he hadn't seen this reaction and was going to t...
Immunoglobulin levels improved at last (after 19 months on Ibrutinib)
After 19 months on Ibrutinib, I was delighted to hear that my immunoglobuins have improved....
Chemo-Free Treatment Best Option for CLL Patients Under 70
There is good news in the advancement of chemo-free approaches to managing chronic lymphocytic leukemia, and I am thrilled to share it with y...
To all of you who supported my petition to get life saving cancer drug called Ibrutinib available to people in my situation, I have been info...
Hi all I know some of you have been following my story since being refused treatment with Ibrutinib as NHS England decided not to follow NICE...
Flying on a plane after starting Ibrutinib
We have plans to meet our kids in Israel at the end of June. If my husband starts Ibrutinib soon, are there any travel restrictions?...
Due to start treatment but confused!!!
If I was chosen for the Ibrutinib and it stopped working would I still be able to have chemo?...
Petition against NHS England and use of Ibrutinib
Dear all Following the Times revelation about NHS England going against NICE recommendations I have begun a petition to get them to follow th...
6 months on ibrutinib
Hello 6 month on Ibrutinib . Good results ( WCC is 9800 from 350.000 at the peack ,all other labs improving ) Very few side effects although ...
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