CLLSA Response to NHS England Failing to Fund Ibrutinib in line with NICE Guidance
CLLSA's response CLL is an incurable blood cancer and the most common form of leukaemia in adults in the UK. CLL is not treatable using surge...
Radiation from the drug ibrutinib does it harm the people I live with?...
Ibrutinib and Shingrix issues
I have had shingles once in the past and it was very painful I have been on Ibrutinib for 4 months and am doing well, now that my out of cont...
Please can you tell me your symptoms and the levels of your WBC when you were started on Ibrutinib...
Today it is 183 and my consultant wants to start me on Ibrutinib - I am VERY nervous because it is still a fairly new treatment. Please can y...
Have Relapsed From FCR and looking for best choice for Round Two
Took four rounds of FCR but was told I had to stop because I was needing transfusions every second day. My cll has returned over the last yea...
Ibrutinib & neuropathy?
My husband has been on ibrutinib for 7 months & it has been working well for him with minor side effects ( small rash, some joint pain ) unti...
Ibrutinib related issues
I am wondering if anyone here has info concerning what is next line of treatment if Ibrutinib dos no longer work or as my body seems to be de...
I have been on Ibrutinib since June for my SLL. Have had various side effects that have come n gone have now got very sore finger tips....
Watch and wait is over
Hi all, I was diagnosed 3 years ago with CLL, I am now 53 yo and with wbc up and platelets down as well as swollen lymph nodes and enlarged s...
Just Curious about Drinking Alcohol while taking Ibrutinib
Just wondering. 3 weeks ago, I started Ibrutinib treatments and everything seems to be going as planned ( no side effects of any kind )....
Encouraging results from son of Ibrutinib studies (Acalabrutinib/Calquence)
In case you need any more persuasion that we are in exiting times for the future of CLL, read this article about the exciting results of a dr...
Venetoclax and spleen enlarging
My husband is on an ibrutinib venetoclax combo trial. His spleen reduced after initial few months on ibrutinib but after 4 doses of Ven, it l...
First day on Clinical Trial Ibrutinib / Venetoclax
At first I refused treatment and tried the natural path but I soon realized that although I was keeping my CLL in check I wouldn't be able to...
15th day on Ibrutinib and some side effects.
Well it's been 15 days since I started IB on the clinical trial with Venetoclax . I have had several minor side effects so far that are worth...
Is watch and wait still the best early option
I know there are many on the watch and wait which is not easy and sometimes frustrating. With the approval of Ibrutinib and other non chemo b...
How to pay for ibrutinib my doctor said big drug companies help, Just wondering if anyone had exsperience with this also, how do they determi...
I was just told I am supposed to start taking Ibrutinib treatment for my CLL....
This trial is going to reopen- Called CAPTIVATE. Ibrutinib plus venetoclax study sponsored by Pharmacyclics - Study Number PCYC-1142 .
Title: Phase 2 Study of the Combination of Ibrutinib Plus Venetoclax in Subjects With Treatment-naïve Chronic Lymphocytic Leukemia/Small Lym...
Don’t stand so close to me!
However, my 3 month CLL check at Mayo came back with a dropped neutrophil count as well as a dropped hemoglobin count from last time - all fr...
Not MRD- yet
Although a full remission due to the excellent synergy of Ibrutinib ( 9 periods ) and Venetoclax ( 6 periods ) there is still a level of appr...
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