Raising UK EDS-awareness: cause quite a of us 🦓s count a form of hypermobility among our comorbidities
[ b]Inquiry into treatment of Ehlers Danlos patients and its comorbidities[/b ] Ehlers-Danlos Syndromes ( EDS ) are part of a group of connec...
Hey I'm just wondering if anyone else suffers with hypermobility with there fibro and cracking joints....
Raising EDS awareness in the UK
The most common type is hEDS, otherwise known as hypermobile Ehlers-Danlos Syndrome. After being contacted by many EDS patients with tragic s...
A couple of months ago I was given a diagnosis of hypermobility syndrome and fibromyalgia after several years of trying to find out what was ...
Feel like being ignored by Rheumatologist and GP not sure what to do next?
I also have Vocal Cord Dysfunction Disorder ( suspected ) and the Respiratory consultants said they see a lot of patients with EDS and condit...
Diagnosed with Joint Hypermobility Syndrome but I’m not sure.
After a lot of physio both paid for and nhs and little improvement I was sent to rheumatology. My only party trick is to roll my big toes as ...
I have depression and Ehlers-Danlos syndrome, classical. I read something early this morning online about people are sometimes diagnosed wron...
Joint Hypermobility Confusion
So I'll start off saying that I don't have EDS ( at least not that I know of ), so my apologies if this seems completely irrelevant. However,...
Diagnosed.. Fibomyalgia and joint hypermobility!
Well after seeing specialist I have NOT got Lupus but he's confirmed I have Fibromyalgia and joint hypermobility.....
Hello, I am looking for some advice, my 3 year old son has got joint hypermobility, he’s in pain every night to the point he is in tears with...
Confused over diagnosis!
I went in expecting a diagnosis of CFS or fibro, but this EDS suggestion has come at me completely from left field! Does anyone have experien...
Vascular EDS gene testing in UK
Hello, I have a diagnosis of hypermobile EDS made clinically with no genetic testing, however two of my family members have features suggesti...
Fibromyalgia and joint hypermobility
This may have been discussed but has anyone any advice. -i was diagnosed with fibromyalgia some 10 yrs ago but given family history and vario...
Hypermobility or more?
Hey, just to give a round up I'm 21 and I've suffered from joint and muscle pain, stiffness and locking etc pretty much since I can remember ...
Family with vascular EDS but I have hypermobility...
Anyway I wanted to ask if it is likely I have a different type of EDS or not. Anyone know if I am likely to have a different sub type of EDS ...
Hypermobility of joints
Does anybody else with RA have hypermobility of their joints? I feel like a freak because I can bend my fingers in ways that apparently other...
Stomping Your TOE & Hypermobility Syndrome
Like really HOW do hou know if done damage to toes if stomp your toe and suffering from Hypermobility Syndrome or as its also known Ehlers Da...
Reduce joint pain immediately
Advice, please anyone with joint pain stop eating sugar and you might be surprised at the aches in joints reducing. It really helps for joint...
EDS or HMS
Hi, In June 2015 I was diagnosed with mild joint hypermobility and bilateral pes planus ( flat feet ). after being diagnosed with hypermobili...
Understanding Needed Please
I scored 4/9 on the Beighton score and now being sent for heart scan and neck scan. Also if I'm found to have a cardio/ blood vessel problem ...
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