Search
Search
About
Log in
Join
Experiences with
Hydroxyurea
Posts
Communities
497 public posts
Filter results
how to get off amiodrone
The reason is I have a blood disorder and take
hydroxyurea
. I have developed excrutiating debilitating venous ulcers on my legs and heel which the
hydroxyurea
is preventing from healing and have to stop taking the
hydroxyurea
and change to another medicine as soon as possible.
The reason is I have a blood disorder and take
hydroxyurea
. I have developed excrutiating debilitating venous ulcers on my legs and heel which the
hydroxyurea
is preventing from healing and have to stop taking the
hydroxyurea
and change to another medicine as soon as possible.
kitttycat
in
AF Association
3 months ago
what if I stop taking hydroxyurea?
Dr put me on
hydroxyurea
(2 tablets daily) . Before this I was only on aspirin for seven years with ET. Today I saw Dr. again . My platelets are 1100. Days asked me to continue taking
hydroxyurea
, but I am afraid of this drug. As it’s highly toxic.
Dr put me on
hydroxyurea
(2 tablets daily) . Before this I was only on aspirin for seven years with ET. Today I saw Dr. again . My platelets are 1100. Days asked me to continue taking
hydroxyurea
, but I am afraid of this drug. As it’s highly toxic.
mustabshra
in
Fight MPN
4 months ago
Hydroxyurea Side Effects
66 year old male diagnosed with PV last fall (October) put on
Hydroxyurea
oral, 500 mg/day. I have Hashimoto's thryoiditis (auto-immune condition causing low thyroid).
66 year old male diagnosed with PV last fall (October) put on
Hydroxyurea
oral, 500 mg/day. I have Hashimoto's thryoiditis (auto-immune condition causing low thyroid).
hsdale3
in
MPN Voice
2 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Hair thinning
I have been taking
hydroxyurea
for two years and noticed my hair is thinning on top and on the sides. Any advice ? Should I switch to another medication or do they have worse side effects? I will talk to my doctor about this in a month..
I have been taking
hydroxyurea
for two years and noticed my hair is thinning on top and on the sides. Any advice ? Should I switch to another medication or do they have worse side effects? I will talk to my doctor about this in a month..
Winchie
in
MPN Voice
1 month ago
Pegasys side effects
I was switched from 500
Hydroxyurea
/day to 90mg Pegasys every two weeks. The pain in hips and thighs is substantial - headache also, but not as bothersome as the muscle pain. Has anyone else experience this on Pegasys. Also, has anyone tried CoQ10 for muscle pain and has it work? Thanks
I was switched from 500
Hydroxyurea
/day to 90mg Pegasys every two weeks. The pain in hips and thighs is substantial - headache also, but not as bothersome as the muscle pain. Has anyone else experience this on Pegasys. Also, has anyone tried CoQ10 for muscle pain and has it work? Thanks
Dusty777
in
MPN Voice
1 month ago
Hydroxyurea Labeling Updated With Information Regarding Interference With continuous glucose monitoring
https://www.empr.com/home/news/
hydroxyurea
-labeling-updated-with-information-regarding-interference-with-cgms/#:~:text=According%20to%20the%20updated%20labeling,relied%20upon%20to%20dose%20insulin.
https://www.empr.com/home/news/
hydroxyurea
-labeling-updated-with-information-regarding-interference-with-cgms/#:~:text=According%20to%20the%20updated%20labeling,relied%20upon%20to%20dose%20insulin.
ERei
in
MPN Voice
4 months ago
changed from hydroxyurea to anargalide
Hi everyone, My platelets were not getting reduced with
hydroxyurea
, so today dr put me on anargalide. Interferon is not available in my country (Malaysia) so I do have only two options. Any insight on ur experience with anargalide?. Thanks
Hi everyone, My platelets were not getting reduced with
hydroxyurea
, so today dr put me on anargalide. Interferon is not available in my country (Malaysia) so I do have only two options. Any insight on ur experience with anargalide?. Thanks
mustabshra
in
MPN Voice
3 months ago
Besremi benefits?
hello community, I’ve previously asked a question about Besremi vs Jakafi ( for my husband with PV, currently on
hydroxyurea
) and really appreciative the responses.
hello community, I’ve previously asked a question about Besremi vs Jakafi ( for my husband with PV, currently on
hydroxyurea
) and really appreciative the responses.
Laluna5683
in
MPN Voice
3 months ago
Eating Grapefruit while taking Hydroxyurea
UPDATE: I sent a message to my MPN Specialist's office and they told me there is no interaction noted with grapefruit/grapefruit juice and
Hydroxyurea
.
UPDATE: I sent a message to my MPN Specialist's office and they told me there is no interaction noted with grapefruit/grapefruit juice and
Hydroxyurea
.
Sheena2020
in
MPN Voice
5 months ago
Hydroxyurea got ET, I am worried to be stuck with it for the rest of life.
Your experience with
hydroxyurea
?
Your experience with
hydroxyurea
?
mustabshra
in
Fight MPN
4 months ago
Red spots palm of hands
I a, on
Hydroxyurea
500 7 pills week to 9 per week. I am having red marks on palms of hands and they hurt when bend hand. I am wondering anyone have this problem. I am seeing my Oncologist next week and will ask her at that time. Has anyone had this problem.
I a, on
Hydroxyurea
500 7 pills week to 9 per week. I am having red marks on palms of hands and they hurt when bend hand. I am wondering anyone have this problem. I am seeing my Oncologist next week and will ask her at that time. Has anyone had this problem.
Rainyday22
in
MPN Voice
2 months ago
PV fatigue
I have just started Pegasys interferon after failed treatments of phlebotomies and
Hydroxyurea
. My fatigue since diagnosis and treatments starting 2021 is all consuming. I don’t know how to deal or cope with the tiredness, lack of energy, and overall feeling unwell.
I have just started Pegasys interferon after failed treatments of phlebotomies and
Hydroxyurea
. My fatigue since diagnosis and treatments starting 2021 is all consuming. I don’t know how to deal or cope with the tiredness, lack of energy, and overall feeling unwell.
CherokeeBlue
in
MPN Voice
17 days ago
Dental Issues with Hydroxy Use?
I have been taking
hydroxyurea
(500mg 3 times a week) since November 2023. I have recently heard that it can cause dental issues such as bleeding/ receding gums, tooth breakage/ loss, and tooth discoloration.
I have been taking
hydroxyurea
(500mg 3 times a week) since November 2023. I have recently heard that it can cause dental issues such as bleeding/ receding gums, tooth breakage/ loss, and tooth discoloration.
FlannelPJs
in
MPN Voice
2 months ago
ET CALR
500 mg 2 capsules beside 5 Anagrelide daily ,,interferon is not available at my health provider , and I can’t take risk with
Hydroxyurea
because of my cancer history ..
500 mg 2 capsules beside 5 Anagrelide daily ,,interferon is not available at my health provider , and I can’t take risk with
Hydroxyurea
because of my cancer history ..
Neghdar73
in
MPN Voice
2 months ago
Burning feeling in my throat
Hi I am 59 and was diagnosed with Polycthemia Vera a year ago Since I was diagnosed they have me on
Hydroxyurea
500 mg 2x a day .
Hi I am 59 and was diagnosed with Polycthemia Vera a year ago Since I was diagnosed they have me on
Hydroxyurea
500 mg 2x a day .
Krisim
in
MPN Voice
2 months ago
Rate of Decrease in RBC Count
I have started on
Hydroxyurea
. Are there any resources that provide information on the rate I could expect my RBC count to go down? 100K/month, 50K/month, etc. Thanks! hsdale3
I have started on
Hydroxyurea
. Are there any resources that provide information on the rate I could expect my RBC count to go down? 100K/month, 50K/month, etc. Thanks! hsdale3
hsdale3
in
MPN Voice
5 months ago
Itchy red spots
I’m on 500 mg
hydroxyurea
every other day. I’ve recently started to have recurring outbreaks of itchy red spots, similar to insect bites. I had them for several years pre PV diagnosis, but they stopped a little less than a year before my PV diagnosis. They are not due to skin dermatitis.
I’m on 500 mg
hydroxyurea
every other day. I’ve recently started to have recurring outbreaks of itchy red spots, similar to insect bites. I had them for several years pre PV diagnosis, but they stopped a little less than a year before my PV diagnosis. They are not due to skin dermatitis.
Greycat4
in
MPN Voice
2 months ago
Does anyone deal with chronic headaches with ET JAK2?
I have taken 500 mg
Hydroxyurea
starting daily, then every other day, 3x a week, and 4x a week. I had breaks between each timeframe. This time I went off it for a month because of headaches. However, the headaches continue daily.
I have taken 500 mg
Hydroxyurea
starting daily, then every other day, 3x a week, and 4x a week. I had breaks between each timeframe. This time I went off it for a month because of headaches. However, the headaches continue daily.
Mirror368
in
MPN Voice
16 days ago
Dry skin
Does anyone feel that
Hydroxyurea
causes your skin to dry out and wrinkle faster?
Does anyone feel that
Hydroxyurea
causes your skin to dry out and wrinkle faster?
Winchie
in
MPN Voice
6 months ago
HU and Osteoblasts
My info is from a quick read of
Hydroxyurea
Induces Bone Marrow Mesenchymal Sromal Cells Senescence and Modifies Cell Functionality in Vitro (PubMed Central from the National Library of Medicine).
My info is from a quick read of
Hydroxyurea
Induces Bone Marrow Mesenchymal Sromal Cells Senescence and Modifies Cell Functionality in Vitro (PubMed Central from the National Library of Medicine).
nightshadow
in
MPN Voice
2 months ago
1
2
...
25
Next page
10
20
Filter results
Clear filters
Posted in
All communities
MPN Voice
460 results
CLL Support
8 results
Sickle Cell Society
8 results
View top 10 communities
Sort by
Most Relevant
Newest