I've to start on hydroxyurea
Any advice would be appreciated. Best wishes lainy 🤗...
Newly diagnosed and scared
I have been started on hydroxyurea and Alloprinolol for prevention of gout for the 1st month. My haematology consultant has decided against v...
First month of the rest of my life done!
And my platlet count has dropped to 296 from over 840. Has anyone else ever had such dramatic results?...
New to this
Newly diagnosed with MPN and started on Hydroxyurea 500mg twice a day....
Fascinating drug comparison table
This has been posted on MPN-Net, not seen it before. Since every specialist seems to have a different viewpoint I’m not sure how reliable it ...
First time on Hydroxyurea
Lately my haematocrit started to rise, now 51 with very low iron and ferritin....
As my platlets currently 908 have been slowly rising have been told I should start on Hydroxyurea....
Hello,I'm new to the group and I'm so glad I found this site. I was diagnosed with pv 6 months ago....
Hydroxyurea under age 50 ? Anyone
Hi MPN family, I just want to ask is anyone on hydroxyurea that is around the 50 age mark ?...
Phlebotomy or Hydroxyurea
I have PV Jak2 positive. My blood counts have been very stable since 2012 so I have not been on any medications or other treatments....
Breathlessness and Hydroxyurea
I have been on Hydroxyurea for PV for 3 years or so, and have now developed marked breathlessness which is beginning to get problematic....
Urea on the brain leading to dementia
For those of you that follow the medical Science, World Prof Garth Cooper of Manchester University has show that high levels of Urea in the b...
ET with CALR+ type 2
Hi Fellows, I am 29 years old and I have been diagnosed recently with ET, CALR+....
Has anyone been prescribed Hydroxychloroquine with Predisnolone? And if so jave you experienced any after effects?...
Ruxolitinib or Interferon
Hi everyone I have PV diagnosed late last year and since then it's been a bit of a roller coaster of weekly Vx s and different cytoreductive ...
Excellent supplement for those on Hydroxyurea
Hi all I have been on Hydrea for 6 years and it always freaks me out to be taking chemo meds daily. I had the genetic testing done to see whe...
As far as I know there is no cure for SCD. The Haematologists in the UK, try to manage the painful episodes with strong opioids e.g. OxyConti...
Hello my name is Lisa . My doctor said that I have myeloproliferative neoplasms....
Celiac Artery Stenosis/Splenic Artery Aneurysm with ET - anyone else? ...
I have been referred to a vascular surgeon who I am seeing next week but am really interest to know if anyone else with ET has suffered from ...
Is massage ok with ET? Plus ITA's?
I have ET JAK2+ and platelets 488. Age 55 yrs....
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