Diagnosed in October last year....appointments and medication! Help
Hi Newly diagnosed but suspect I have had it for a long time . Finally saw specialist in October had steroid injection had several x rays blo...
I'm a newbie
Forgot to ask rheumy nurse, when they say have you any questions my mind goes blank....
How many of you have reduced your working hours due to Lupus? Any advice regarding medication to ask for alongside Hydroxychloroquine?
The pattern with my lupus seems to be that I have a couple of weeks feeling fairly reasonable, then a couple feeling awful-mouth ulcers, puff...
Eye problems with RA?
Ever since I’ve had RA, for over 7 months now, I’ve had very irritated eyes. I wondered if this was the RA or possibly the drugs I’m on, name...
Reactions to all medication help and advice needed.
Hi have been on the Hydroxychloroquine for a few weeks. Am thinking I am allergic to it as after every tablet I take I start to feel quite un...
Hydroxychloroquine and stomach issues
Has anyone stopped taking hydroxy because of stomach trouble? If so did it help?...
Hydroxychloroquine and tinnitus
Does anyone think, or even better know, that hydroxy caused their tinnitus? If so, how long after you started hydroxy did it begin, and did i...
Advice to avoid Lupus flare after surgery please
But still, it doesn't take much to trigger a Lupus flare as we know!! So was wondering if any of you have any lived experience you could shar...
my husband has gone in for his yearly iloprost treatment he missed last year and has been in a lot of unbearable pain....
Hi everyone I am seeking some advice about methotrexate, I have RA and have been taking 200mg of hydroxychloroquine twice a day for 7 years a...
I was diagnosed 5 yrs ago with cutaneous lupus and sjogren's syndrome, I had blood tests and skin biopsy, I take Hydroxychloroquine....
Positive ANA/negative ENA update!
I had a positive ANA test and was referred for an ENA panel. It has come back negative, as well as C3 and C4 being negative too....
I’ve been off all drugs for about 8 months now due to side effect on my stomach , I’ve tried methotrexate , sulfasalazine and one other which...
Advice please Rheumatology appointment to assess for biologics cancelled for tomorrow 🙁
I haven’t posted here for quite a while and just plodded on with first methotrexate, then hydroxychloroquine and finally leflunomide and alon...
Foul smelling rectal discharge
sorry if this post is a bit off but I need advice. I have SLE and sjogrens, am on hydroxychloroquine....
Anyone had any side effects from hydroxychloroquine? My rheumy had been trying to get me on it for 18 months....
Hi folks I sometimes dip into this forum but have never posted before. I was diagnosed in 2005 and been on 25mg mtx ( injections ) and 200mg ...
Living well with SLE
I’m a 46 year old Physician diagnosed with SLE about 8 months ago....
Received letter from rheumatologist today , Immune system disorder because of positive nuclear antibody bloods but he doesn’t think lupus ! B...
Parotid removal and Hydroxychloroquine
I've had Sjogrens since interferon treatment 10 years ago and recently needed a troublesome parotid gland removed due to unidentified lumps a...
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