Hada88 in Headway 3 months ago
I’m a 29 year old female who was diagnosed with hydro 9 months ago. I’ve had 4 operations since due to blockage and the need for extra tubin...
Roseffie in Fibromyalgia Action UK a year ago
Has any one with fibro/ME had hydrocephalus? I have been diagnosed with NPH and am wondering if there is a connection as brain matter can sh...
sylviagreenhalgh in Ataxia UK 3 years ago
last time I saw the neuro bod he said I had hydrocephalus and might benefit from having a shunt to drain off the CSF - he diagnosed me with ...
martinbradley in Headway 9 months ago
3 WEEKS AFTER V P SHUNT STILL GETTING BAD HEAD ACES, AND STOMACH PAINS, IS THAT NORMAL. ALSO FELL VERY TIRED ALL DAY CAN ANYONE ADVISE
Joy-H in Brain health 2 years ago
I have just been told this is what I have, I am waiting to have lumber puncture at Kings College, my headaches are getting very bad and when...
Silmarillion in Headway 2 years ago
Hello everyone !
I have hydrocephalus following a SAH 3 months ago. I was hospitalised for it last week. I saw my neurosurgeon a couple of da...
martinbradley in Headway a year ago
HI DOSE ANY ONE KNOW HOW LONG I HAVE TO WAIT FOR MRI SCAN,HAD CT SCAN MARKED URGENT REFERRAL FOR MRI .WHAT IS TIME SCALE
MXman in Headway 14 days ago
Haven't been on the forum for a while so thought I would make a return as 3 years on from Bi I am suffering a little and wanted some ...
Living with Hydrocephalus
Pip70 in Headway 10 months ago
I am new here a 47 years old woman and living with the effects of Hydrocephalus and would like to communicate with others in the same situat...
Suuex in Headway 8 months ago
Hi it saddens me to see yet again Hydrocephalus isn’t mentioned in the topics to choose from. I have NPH which is the dementia form of it ye...
14penny in Headway 2 years ago
Hi everyone, I usually post on the RA part of this forum but thought I would ask if anyone has had a third ventrisculotomy done ( hole in br...
Hydrocephalus & MS
suzy20 in My MSAA Community 7 months agoPOPULAR
Hi all, Has anyone's doctor noticed what looks to be spinal fluid around the brain, (Hydrocephalus), which can be caused by MS (amongst a n...
Normal pressure hydrocephalus
NanBabs in PSP Association 3 years agoPOPULAR
Normal pressure hydrocephalus, has anyone asked about the similarities to the symptoms of PSP ? I have asked every doctor we have seen and t...
Living with brain injury caused by hydrocephalus
Hi new here and to social media! I am a 47 year old woman living with the effects of Congential brain injury due to hydrocephalus, I have le...
Relationship between long standing PA symptoms and hydrocephalus
helihottie in Pernicious Anaemia Society 5 years ago
I was repeatedly misdiagnosed and then finally diagnosed with PA at the end of November 2012 after 2 rather difficult years with symptoms. B...
Hydrocephalus from ecoli meningitis - 5 month old
paigerprincessa77 in Meningitis Now 2 years ago
My daughter is now 5 months old and we were just informed yesterday she will need shunts & tube for lifetime. We were also told she has NOT ...
Listeriosis Meningitis, leading to hydrocephalus...neurological problems specific to Hands and ability to grip.
Ming2405 in Meningitis Now 5 years ago
My poor darling husband contracted listetiosis Meningitis and was on the road to recovery when he was hit by hydrocephalus, can anyone out t...
Hydrocephalus, shunt, revision,revision,revision, perotinitus,meningitus, mci, narcolepsy, adjustment disorder, single mum of two.
ladyjane in Headway 6 years ago
ive read so many posts here which remind me of me. I try to keep my chin up, but its hard.
I had a AN removal (85%) In may 2013 been referred for gamma knife. After op got hydrocephalus (fitted variable lumbar shunt) have physio
Elkcub001 in Acoustic Neuroma Support 4 years ago
My balance is still quite poor. Feel disorientated/drunk! (After a year) this feeling is worse when outside, which makes me feel very anxiou...
Brain surgery for cyst of the third ventricle
rebeccalouise181 in Brain health a year ago
Hi all, I'm 21 years old and had brain surgery 4months ago for treatment of a cyst/ benign tumour on the third ventricle of the brain which ...
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Shandiva in Anxiety Support 2 years ago
I have major anxiety, I have a condition where my body produces more water than usual and it causes me to pee a lot. To add insult to injury
Mark-duthoit-76 in Headway 6 months ago
I have just joined and wanted to introduce myself. I have Chiari Malformation, Syringomyelia and Hydrocaphulus
My brother Known hypertensive and known vasculitis
Dr_nadolol in Meningitis Now a year ago
42 years old my brother was admitted in a hospital with fever and shivering. Initially doctors suspected malaria and typhoid . The blood rep...
mylife2014 in Headway 4 years ago
I had a brain haemorrhage and hydrocephalus 5 years ago. I have a non programmable shunt. Has anyone had a brain haemorrhage/hydrocephalus a...
Rusty_1980 in Headway 2 years ago
Hi all, am new here. My husband is in hospital following a colloidal cyst removal yesterday.
He was admitted on Friday with hydrocephalus and...
Mgharris01 in Headway 5 months ago
I am 53 years young and was told (last week) that my recent sudden onset headache was a result of Hydrocephalus, something that I didn't rea...
Bobsburger5 in Headway 2 months ago
To many shunt placement
ggee in Headway 2 years ago
I had a shunt fitted in August for Hydrocephalus. My neck aches far more than it did before I had it fitted.
Can you advise?
I’m having surgery agin I’m having an allergic reaction to my shunt I’m just waiting for it to come in
lozza1903 in Gorlin Syndrome Group 5 years ago
My 22 yr old son has just been diagnosed as having Gorlins. He had jaw cysts and around 10 teeth removed when he was about 12 but was never...
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