I know several of mpn's sufferers have spoken of this problem before on here about our fingers & toes turning blue & painful. Researching it ...
Newly diagnosed with ET. How to afford Pegasys???
Over the course of the last few months, I’ve had a lot of ups and downs from my recent diagnosis of ET Jak2+ ( 5% mutation ), platelets were ...
Immune system compromised?
Hello, all. Last week I developed a bad sore throat and headaches....
My New Reality
I was diagnosed with ET last year after confirming that I have the CALR mutation. I can’t seem to find any good information about sports and ...
Hydrea and Platelet reduction. What about the other blood cells?
Hi, just a thought.... if my platelets have reduced from 730 to 287 in under 4 months, how can they tell when they will stop going down and a...
I am 76, Polycythaemia Vera for 9 years, taking Hydrea 3 capsules daily now....
Pegasys 180 injection reaction
Morning all, So I've been off of Hydrea for a few months now and on Pegasys 180 for 4 weeks. Used 2x quater and 2x half dosage so far....
Stomach issues w/Hydrea
Taking 500mg Hydrea daily. Have terrible stomach issues....
Pegasys- liver enzymes - dandelion root tea
I have ET for almost 20 years & have been taking Hydrea, now it’s progressed to MFI have started on Pegasys 90 per week as well as hydrea....
Absolutely different experience entirely!
Hi all,I had my new appointment with a new haematologist at a new NHS authority yesterday and the contrast to when i was first diagnosed and ...
As other individuals have said I think of all the questions when I leave the hospital. I have been told I have mpn/ mds overlap....
Polycythemia Vera with myelofibrosis
High risk patient completed 5 years on Hydrea currently on Jackavi. What is the prognosis?...
Itching on pegasus.
Itching on pegasus. Hi I'm 48 and started peg mid Aug 45mcg whilst reducing hydrea and anagrelide....
Myelophibrosis and Ruxo
Hi! My mom has MF for 8 years and all of them is on Ruxo, but lately she started to feel worse-spleen has grown bigger ( 24cm ), and she has ...
Does anybody take very low dose of Hydrea?
Hi all, so suddenly my counts are more normal, after taking 500mg daily of Hydrea for a little more than a year. The doctor suggested to try ...
high heart rate
I have PV with Jak 2 positive. Have been taking 1000 mg since 4 months....
Hi I have recently commenced hydrea to reduce platelets but I’m worried about potential fall in Hb. Has anyone had experience of this Nurset...
hello people I had my blood test yesterday and the count was at 600 my endo said that its still to high and raised my hydrea from 2 a day to ...
Hydrea and a certain smell
Hi Everyone. I have held off writing his post because it sounds so weird but it's time I said something so here goes....
Dr. removed hydrea and placed on baby aspirin only
, that I discovered, and see that she excepts my insurance company and that is accepts E.T patients....
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