I know several of mpn's sufferers have spoken of this problem before on here about our fingers & toes turning blue & painful. Researching it ...
Immune system compromised?
Hello, all. Last week I developed a bad sore throat and headaches....
My New Reality
I was diagnosed with ET last year after confirming that I have the CALR mutation. I can’t seem to find any good information about sports and ...
I am 76, Polycythaemia Vera for 9 years, taking Hydrea 3 capsules daily now....
Hi I am a 57 yrs female ET Jak2+ current treatment Hydrea and Aspirin....
Pegasys- liver enzymes - dandelion root tea
I have ET for almost 20 years & have been taking Hydrea, now it’s progressed to MFI have started on Pegasys 90 per week as well as hydrea....
Hydrea and a certain smell
Hi Everyone. I have held off writing his post because it sounds so weird but it's time I said something so here goes....
Does anybody take very low dose of Hydrea?
Hi all, so suddenly my counts are more normal, after taking 500mg daily of Hydrea for a little more than a year. The doctor suggested to try ...
Absolutely different experience entirely!
Hi all,I had my new appointment with a new haematologist at a new NHS authority yesterday and the contrast to when i was first diagnosed and ...
I get confused why we need to drink a lot of water:/ Is it because of the Hydrea we are putting into our body or because of the MPN we have b...
hello people I had my blood test yesterday and the count was at 600 my endo said that its still to high and raised my hydrea from 2 a day to ...
Slow healing from ET or Hydrea??
Hi. Am wondering if anyone knows if our bodies heal more slowly from injuries because Hydroxyurea or ET?...
Hydrea over age 65 ET
Hi All, Wondering if anyone over age 65 with ET is not being treated with meds for their condition....
I have PV, diagnosed in early 2010, take Hydrea, now 2-3 daily and 100mg aspirin....
Abnormal bleeding ladies?
would like to add i hope everyone associated with mpn voice & all mpn'ers on the forum have a happy christmas & a good 2019!...
1st visit to Nurse specialist after starting Hydrea
Wed Fri and the 75 mgs of aspirin each day, after 9 pills, today I had a hospital appt, and my platelets are down to 571, very relieved, my h...
ET and iron intake and supplements
Since being diagnosed with ET JAK2+ in November 2016 and 9x500mg Hydrea weekly, I have never been given any information on either taking iron...
THE GREAT OUTDOORS
My age is 74, I have had ET for 6 years for which I have been taking Hydroxicarbomide....
Foot and calf cramps
Has anyone else with ET experienced this or is it just getting older thing?...
Ischemic Colitis caused by ET
After having ET for approximately 8 years, last month I ended up with ischemic colitis....
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