Hughes Syndrome Forum

Joint/ Muscle pain that 'moves' around body

Hi everyone!

Does anyone have joint and/or muscle pain that seems to migrate around the body at times? I have had shoulder/ upper back pain on one side for a couple weeks, then that stops, and then it moves to lower back pain a couple weeks, then stops there, and then to elbow, etc. Very strange. Just curious if others have had this? I just began Plaquenil (generic form) one month ago, so I haven't yet noticed any benefit- too early I suppose.... I like to stay active and these pains can be completely debilitating and so frustrating!! Not to mention the general fatigue and slight depression just from feeling this way.

Sending positive thoughts and good wishes to all out there!

H

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11 replies

    pamcelis
    pamcelis

    Hi!
    This happens to me all the time! I have tried all types of medicines andevery thing i can rub on my joints. The only thing that has worked for me is icyhot. But not all icy hot. The one that works best for me is the spray presentation with 16% menthol ( highest percentage ive found).
    Hope it works for you too!
    Warmly
    Pam

    tassie
    tassie

    Yes I get this all the time. I take plaquenil but still get roaming pains. I think these "unexplained" roaming pains often confuse drs and so they can't relate and think we are imagining it. So frustrating.

    MaryF
    MaryF Administrator

    A lot of people complain of this with 'fibromyaliga' it sounds very uncomfortable! Mary F x

    Jane-Martin
    Jane-Martin

    Yep, roaming joint pain all the time. Plaquenil certainly has helped, but. I can't remember a day when I have been pain free. My consultant says this is common complaint of his Lupus\APS patients. Steroids really help, he wants me to take low dose every day, but even half a tab a day makes me depressed, so can't do that. It frustrates him as he says the pain is caused by inflammation and he can feel my joints are very inflamed. I also have tendonitis everywhere and this also causes pretty bad pain all over, especially in my jaw.. He put me on Tripiline for that, but I got terrible heart palpitations so stopped. I haven't told him that yet! Some days the pain is worse in different joints and tendons and that is probably what makes it feel like its roaming. Heat is what gives me some comfort. Pain killers dont seem to make a difference.
    Jane xx

    taffydaffy
    taffydaffy

    I have had this also the pain could be in my head then my leg then my toe it can jump all over my body it eased a lot when I went on warfarin and Volterol
    Good Luck Sweetie x

    GinaD
    GinaD

    Yeah, this sounds familiar to me too. Though my pain,when it roams, tends to stay in the same " quarter,". I.e., from left shin,to left thigh, to left hip, to left lower back.

    SueLovett
    SueLovett

    I get this too. Like Jane painkillers don't make much of an impression, Ibuprofin works best but I can't take too much because I am on Heparin and have to be careful about stomach bleeds.

    I am allergic to paracetemol, and plaquenil and have just become sensitive to codiene. Great!

    Oh Joy! I can recommend gin though! x

    jessielou
    jessielou Administrator

    Hi hon
    I get this too, a pain free day would be bliss,
    I take pregabalin and slow release tramadol, plaquenil, they help but pain still there :-(
    I tried the gin n tonic route, inr through the roof and loads of bruises, but felt good for a while!! :-) :-)
    Take care gentle hugs love Sheena xxxx :-) :-) :-)

    maitreya005
    maitreya005

    Posting a little late but I struggled with roaming pain all over my body - i ve had it as long as I can remember and just assumed it was normal to be in pain everyday. I tried a good food elimination diet a couple years ago and my pain virtually disappeared after half a week. The biggest culprits for me were wheat and dairy. Most people scoff when I suggest this but food is one of the biggest substances we put in our bodies plus the elimination diet has less side effects than most any medication. Try it for a week - it worked for me. As long as I avoid those (and a couple of other foods since my body appears to be real sensitive) I am pain free!!

    mala7
    mala7

    hey..I am also suffering from this very frustrating pain which moves allover in body specially in upper back and left chest..I am in depression coz of this

    annak300
    annak300

    I’m 38 and constantly suffer from joints and muscle pain, especially following physical activities. I heard about a new product, which relieves pain available on the British market. It’s Amber Ointment. I heard that it’s all natural. Has anyone tried it? Where can I buy it?Maybe it's worth trying
    Anna

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