My APS poem: A whole day in bed... - Hughes Syndrome A...

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My APS poem

Rhian21 profile image
16 Replies

A whole day in bed

Exhausted body and thumping head

No will can wake

This humbled state

Browbeat

A whole day in bed

pretty duvet, lots of red

analysis paralysis !

A bed of worries

Crushed

A whole day alone

It is so easy to condone

when you don't see

Behind closed doors

Look closer

A whole day alone

Comes to a close again

To suffer pain is,

To prepare for peace

Grateful

A whole day ahead

I force myself out of this nest of a bed

This secret disease

Rhian Elin Thomas

Written by
Rhian21 profile image
Rhian21
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16 Replies
jetjetjet profile image
jetjetjet

Great job :-):-) :-) ---so so so true-- you get a gold star !!!!!!! jet

MaryF profile image
MaryFAdministrator

And a sweeter day for you tomorrow! Mary F x

Bagpuss01 profile image
Bagpuss01

Great poem, it's so nice to know we all have each other to listen too. I always felt so alone.... Take care and BIG hugs, Sam

Dagen profile image
Dagen

You aren't alone and many of us feel your pain but thank you for putting words to it for us:-)

Rukhsana profile image
Rukhsana

Prayers and best wishes .

lovemyheart profile image
lovemyheart

Wonderful poem,expresses many of our days im sure. Take care...Teresa

daisyd profile image
daisyd

Must get up, in hibernation mode and the sun is out xx

popshaw21 profile image
popshaw21

Poetry prompts an emotional response,and know you are not alone.I too love poetry and when i spent 2 weeks in hospital and nearly died.I wrote this poem for my wife who has since died..

"when I die and go to rest

I'll leave behind just one request

No stone so cold lay at my head

Plant a tree for me

Instead.

Scatter my ashes around its base

Let it florish,and grow in grace

Beneath its shady

canopy

Sit a while-remember

me.

I'll not be very far from

you

Nor will the love we always knew.

When,one day,you follow me,perhaps you too,will

leave a tree.

Be sure it's planted next to mine,so the branches intertwine.

Then as they reach up to the sun,my love,they'll be as one"

pluto5 profile image
pluto5 in reply to popshaw21

Yours is a truly emotional poem, sad but explores your feelings. I am sorry about the follow on, but you are a natural poet. Write some more.

popshaw21 profile image
popshaw21 in reply to pluto5

Thank you for your kind words pluto5,I have created many poems and words of wisdom.However since having had many TIA I find it difficult now to compose words.if i ever find some inspiration then i will share it with you.

best wishes

popshaw21

Rhian21 profile image
Rhian21

Oh that was lovely ....waw..could this be the start of the APS Poetry book..could be a great way of raising money for the foundation..what do you think admin ? :)

popshaw21 profile image
popshaw21 in reply to Rhian21

Thank you Rhian21 for your appreciation of my poem.I think it would be brilliant for us all to compose some comforting words of wisdom to share and if we could raise some money,then im in.

Best wishes

Popshaw21 x

pluto5 profile image
pluto5 in reply to Rhian21

A very good isea but how would we do it?

Rhian21 profile image
Rhian21 in reply to pluto5

How indeed ????

kezzie profile image
kezzie

Some wonderful poetry :>)

Rhian21 profile image
Rhian21

I think I should apologize that the punctuation isn't correct on my poem yet..:)

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