Uncontrollable trembling/shaking?

[InSpain]

Hi everyone, I was wondering does anyone have periods of uncontrollable trembling/shaking? If so, do you know what causes it?

[Stannington-lad]

Hi

Sorry that I have not answered your question – This is quite interesting question.

I have the same question as I get a kind of vibration in my arms or legs and then it shakes. It will be interesting to find out what causes this.

[InSpain in reply to Stannington-lad]

Yes, mine is like a vibration too. I usually start shaking and have severe chest pains too. It can last up to an hour or two at its worst. The hospital I go to don't know what it is. So lets hope somebody can answer this question for us!

[Skyllark]

synomes coreea?

[InSpain in reply to Skyllark]

Sorry Skylark but I can't find anything on Yahoo or Wikipedia, is your spelling correct?

[olleberj]

Here's something I found on the internet. "Uncontrollable shaking occurs when the muscles relax and contract repeatedly. Most people experience uncontrollable shaking at some time, usually because of fear or excitement, but a number of neurological diseases that destroy nerve tissue can also cause uncontrollable shaking. These include Parkinson's disease and multiple sclerosis. There are other causes which include stroke or head injury; Essential tremor, which is a nerve disorder characterized by uncontrollable shaking in different parts of the body, or as a side effect of drugs including amphetamines, antidepressants, antipsychotics, caffeine, and lithium, and as a result of withdrawal alcohol or addictive drugs. For more information on the cause of uncontrollable shaking check out neurology.health-cares.net, webmd.com."

[InSpain]

Thanks for this - very interesting reading - I am wondering if there is a link between this a having a TIA or stroke, as I have had more than 1 of each? Very interestingly, your link also includes information about migraine headaches and the link to uncontrollable shaking too.

[Herb]

Yes it could be a TIA or siezure. YOu should get medical attention.

[CanaryDiamond10]

I have severe "trembling" of my right hand and arm which was one of the disabilities my stroke, at aged 49, left me with. I also have a severe stutter. These are both completely managed (with very little breakthrough) with Clonozapam 1 mg. x 2 day. The same stroke left me with limited peripheral vision, weak (sometimes trembling or "asleep") left side. (I use a cane for balance) My hands and feet fall asleep several times a day.The same stroke began migraines that are earth shattering and neverending, pacified only by use of opiates. Although all these symptoms appeared after the stroke, many symptoms cross over to other disease that have either broken off from the main disease of CNS Vasculitis or APS that I was only diagnosed with 2 years ago. In the interim, I have fibromyalgia, osteoarthritis and some unexplained connective tissue disease which is causing severe leg cramping. Also, my hand will arbitrarily drop a cup (without me commanding it). Very, very irritating. NO it didn't slip on condensation. My fingers spring open wide and whatever is in them falls down. I attribute it to something neurological.

Good luck on your quest.

Canary

[InSpain]

Thanks for taking the time to reply Canary. My symptoms are very similar to yours. After a long period of shaking (maybe an hour or two), chest pain and a chronic pain in my head, I become numb down my right side, often lose my speech for a day or two and sometimes the sight in my right eye for a couple of hours. After a CAT scan and an MRI after my last attack my Doc's still can't find a cause.

I have continuous problems when walking, due to lack of balance, I too walk with sticks. One thing that I have noticed is these attacks occur only when my INR levels are too low, whether there is a link or not I really don't know? All I do know is that these attacks are becoming worse over time and are really frightening. So lets hope an answer can be found for all of us experiencing these unpleasant symptoms. xxx

[CanaryDiamond10]

APsnotFab: My stroke happened in 1998. Over the past 12 years my headaches have only changed in the type of pain and duration but they have always been there in some form or another. My neurologist attributes it to nerve endings actually strangulating themselves in my brain and new neural pathways developing new ways to accomplish what it considers damaged. I think our neurologists are working from different causes at hand. Even though they tell me my CNS is "quiessent" (quiet) they sure blame a lot on it! My APS hardly gets any of the blame for pain. I was only diagnosed with it 2 years ago being anticardiolipid positive and something else that escapes me for the moment. My fibro is virtually constant and dependent upon the weather. So is osteoarthritis.

InSpain: I get vessel pops in my eyes that take forever to go away, scare little children, and I was advised that I can expect this at my age. (Grrrrrrrr) I also was diagnosed with scleral icterus. That's the discoloration of the eye at the top. Soon after that, I found I had cataracts in both eyes. Scheduled to have that taken care of hopefully by the end of this year. I go to schedule next week. I'm all the way up to the 300 readers, so there's no where else to go!

I was put on one 325 aspirin/day for APS. So I cannot comment on your theory that your attacks occur only when your INR levels are too low because aspirin is my only thinner. But there are plenty of people here who can comment on that instinct.

I don't know if the pain will ever go away. I have no expectations as 8 years ago I was told by a carefully chosen medical team that I had two years at the most to live. That changed my life more than the diseases did. I started to live my life with less expectations and replacing my values. I don't have a lot of expectations anymore. Except I do think medicine is moving at an alarming pace right now and we are lucky enough to be born in this era. Hopefully, they will concentrate in OUR area and we will all be pain free.

Sending you hope.

Canary

[InSpain in reply to CanaryDiamond10]

Thank you for sharing that with me Canary. I think in our heart of hearts we know that our pain is probably here to stay for the time being or until, as you say, some further research in OUR area of illness is discovered. We can but hope. I have lived continually with pain for more than 10 years now. Along with SLE, APS, various strokes, 2 DVT’s, migraine type headaches, the trembling episodes, (and all that they bring with them!), I live with osteoarthritis and osteoporosis to name but a few. These in themselves are draining. I have a very serious heart valve problem which continues to become worse with alarming speed. However, to be given a time line for living must be so very hard to cope with that I can’t even begin to imagine how you manage.

It struck me from your message how strong, courageous and very positive you sound Canary. A good friend of mine recently sent me some flowers to cheer me up and what she wrote on the card seems so relevant to share with you – “Anyone can give up, it's the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that's true strength.”

Wishing you all that you would wish for yourself xxx

[CanaryDiamond10 in reply to InSpain]

Thanks InSpain: Truly, I think we are kindered spirits on many things. I do it because I'm still here regardless of what the "carefully chosen team" predicted. I do it because the alternative is unacceptable. I do it because I love and am loved by a small but strong, understanding and compasionate family. I do it because I have a support team of friends who actually go back to grammar school (there are 15 of us )with whom we have always been a close group. I do it because there is so much left I have to do.

Sometimes, I just read this site and see patients so much worse than I am and wonder if I could deal with what they must deal with. Would I have that kind of fortitude, that courage? Thanks for the pat on the back, I almost forgot what it feels like. Here is your pat on the back for dealing with pain long term. THWACK! People who are not chronic pain patients have a hard time understanding how pain becomes the norm and the norm becomes fighting the pain with every fiber of your being, all day, every day. I don't have any expectations for that to change. The only changes I can make are in my perception of the pain and the mental pathway I choose to deal with it.

Wishing YOU all that you woud wish for yourself xxx

Canary

[tassie]

During one of these trembling attacks I went to ER where they decided I was just over anxious about having another TIA and basically wrote on my records that I was a nutcase. At the time I couldn't think straight, was finding it hard to find the words and they wrote that I was an "Unreliable historian".

Blood results showed I was low in potassium and magnesium and my INR was too low for me but they dismissed all that ... I was just a nutcase to them.

I also get uncontrollable twitches and I will suddenly drop things or click twice on the computer mouse without meaning to .... have to be careful not to accidentally delete things!

Just a few of the many issues i deal with

[kmac42]

I was diagnosed last year by a psychiatrist who i never met with Conversion Disorder which is classed as a mental illness until a doctor who was visiting from Australia gave me a 2nd opinion and did blood tests which showed positive for Antiphospholipid Antibodies...i've had all sorts of symptoms and have ended up in ER a couple of times after seizures (i have one every 3 months) and have not been treated 'normally' but as a mental health patient. The aussie doc immediately put me on Warfarin and it was like a light bulb was switched on...had first visit with Haemo who took me off Warfarin until he says i get a proper diagnosis...i'm on aspirin which is not helping...i joined a group on Facebook when i was first diagnosed with Conversion Disorder and there are so many people there who have the same symptoms as APS who have been put under mental health and just left...its very sad

[kmac42]

my post above doesn't really answer the question but Tassie's post reminded me of my trips to ER and the battle...

[Herb]

If you have already had a diagnosis it is best to contact your diagnostic doctor or team member if anything like this happens because they will know your condition and what to do. I have been told to contact on call rhematologist at hospital directly if no one from my team is available and anything like this happens.

Unfortunately GP/A&E may not know about our condition and may delay the tests or treatment we need.

Of course there are situations in which an emergency call is always the best.

[miamigirl]

Hi.

I was diagnosed 6 months ago with APS and and waiting for MRI and more lab work results. Although I have not experienced a stroke/TIA one of my complaints before getting diagnosed was my hands shaking and randomly dropping things. To the point of embarrassment sometimes.

I assumed it is just another side effect or symptom of APS.

All the best.

[RebeccaP]

I have experienced this in the past couple of months particularly in my nerves in my face with twitching in my lips, nose and around the mouth, also in my hands and also dropping things randomly - I am taking Amatriptalin (probably not spelt right) and I think this may have a connection to this - is anyone else on this and have they noticed any side effects, or is it just a conincidence and its just another side effect of APS.

[Twinkel]

I was wondering that myself x

[LdyFlyr]

I experienced this just yesterday and had to be taken to the ER. It lasted about two hours and was intermittently minor to severe. It was preceded by an unusual high blood pressure, numbness in arms and fingers, cheeks, nose and lips and tongue. They did a cat scan and everything looked normal so they diagnosed me with an anxiety attack even though I am very sure that is not what it was. I was upset prior to the event but no more than I had been before, I have no history of panic attacks and the dizziness came from within and was not caused by hyperventilating as they decided it must have been. I have also recently experienced rapid and severe changes in my vision in just one eye (twice in the last two years and both times over just a few days) and extreme hair loss within the last two months. If anyone else knows what this might be I would love to figure it out. Thanks

[Imperfections]

When I get excited and in deep thought about something (is how I like to describe it) I do shaky motions with my hands. It's happened to me since I was a child and I'm 20 now. It only lasts for a few min. I have bipolar disorder so I think it could be my hypomania /euphoria releasing. I can't control it. Bipolar is a chemical embalance in the brain where u can't control ur emotions. I also have bad social anxiety.. so I'm not sure what it could be. I don't want to think I have aspbergers (can't spell it ) because I'm intelligent. I read online it could be a system of adhd too.

[Lure2 in reply to Imperfections]

Hi, I must tell you that this is a site for APS (Huges Syndrome). Your symptoms are not very typically for this illness, but if you still think you have APS read about the symptoms on this site hughes-syndrome.org/selfhelp

Best wishes from Kerstin in Stockholm

[Mike1958]

Please let me know if you find out why, I have stroke 3 month ago I'm still weak on my left side but I have the trembling shaking,

[Gizmobronco]

I'm getting the same thing 😞 Suddenly tonight it's come on really bad and I'm too afraid to sleep . Which is making me scared ,

Someone please tell me what's happening . Feels like I'm having some sort of attack 😪😪😪