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Hughes Syndrome APS Forum

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Pain reliefe with APS - use of Pill meds non-effective - in acute pain.Level 8-10 pain level

Skyllark profile image
4 Replies

Does anyone know or ever had an issues with pain managment, with IV meds being the only way to get pain down to a managment level. If so - is there any documentation that I can get to show doctors here in Canada that pill meds are non-effective with people with APS. Would be nice to have Dr. Hughes name on it too, if possible.

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Skyllark profile image
Skyllark
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MaryF profile image
MaryFAdministrator

Hi there, so sorry you are having such a dreadful time. First off, here is a useful contact for your doctors in Canada: crhdq.ulaval.ca/recherche/c....

I think this would be a starting point: Hope this is of help. Mary F x

Skyllark profile image
Skyllark in reply to MaryF

thanks - what I was looking for was something that was from Dr. Hughes, or one of his team to see if there was or has been any research in this?

Skyllark profile image
Skyllark in reply to MaryF

the link does not work

MaryF profile image
MaryFAdministrator in reply to Skyllark

Oh dear sorry about that, I had a look hoping to find somethin = ncbi.nlm.nih.gov/pubmed/225..., but I shall send you this, and this one = med.illinois.edu/hematology... down the page you will see a Canadian contact: apsaction.org/ - this may prove more useful in terms of getting some hope. Mary F x

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