My St Thomas' appointment: First time... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,351 members10,539 posts

My St Thomas' appointment

panda60 profile image
4 Replies

First time in two years since I'd been but very short appointment. Couldn't come up with any reason why my memory has got worse, and thought MRI was ok, but doesn't think it's anything to do with Hughes. He said I was no worse than when last seen. So back to the neurologist again to see what he thinks.

Wasn't expecting any easy answers!

Written by
panda60 profile image
panda60
To view profiles and participate in discussions please or .
4 Replies
panda60 profile image
panda60

Thanks Lynn

Have e-mailed you privately .

MaryF profile image
MaryFAdministrator

Hi there, sympathies... my memory is definitely worse, and MRI fine! However I do get periods when it is better, but my general opinion is that it does not behave how it should do. Mary F x

Hope you don't have too long to wait, good luck.

Manofmendip profile image
Manofmendip

Hi Caroline

My memory is getting very bad too and my latest MRI showed no changes from the previous two; just the same small lesion.

Best wishes.

Dave

You may also like...

St thomas's. Hughes consultant. Positive appointment.

Hi all, I've been st thomas's. Hughes clinic. The consultant was lovely, started on plaquenil and...

St Thomas's appointment coming up

warfarin, Hydroxychloroquine, azathioprine for memory issues. Antibodies became negative (around...

Angry with St Thomas's

warfarin by Prof Hughes himself. I cannot function off of it. The letter explains why he has come...

Is St Thomas' discharging patients a lot at the moment?

suggest both. And yet dr said bloods were inconclusive, advised me to come off warfarin and would...

Referal to St Thomas's

have lots of questions and my gp trys gamly to answer them. What I want to know is am i entitled to...